AMMF News
Addressing shortages of pancreatic enzyme replacement therapy (PERT)
There are problems with the supply of pancreatic enzyme replacement therapy (PERT) which has made it difficult to obtain for the last year and shortages are predicted to last until 2026. What is pancreatic enzyme replacement therapy (PERT)? Pancreatic enzyme replacement therapy (PERT) is a prescription medicine used to treat pancreatic enzyme insufficiency (PEI). PERT is a capsule taken with food to ...
Read MoreThe Lancet publish an article co-authored by AMMF’s CEO for World CCA Day 2025
For World Cholangiocarcinoma (CCA) Day on 20th February 2025, the Lancet has published an article, co-authored by AMMF’s Founder and CEO Helen Morement, titled “Understanding Cholangiocarcinoma – perspectives from three European advocacy groups”. The article, which was also co-authored by Elisabeth Baucells of Asociación de Tumores de Vías Biliares (ATUVIBI) from Spain and Paulo Leonardi of ...
Read MoreHalf of cancer patients not getting the right treatments
On Tuesday 19th February 2025, BBC News reported that audits conducted by the National Cancer Audit Collaborating Centre (NatCan) across nine major cancers (responsible for 80% of cases) have highlighted significant variation between hospitals and up to half of patients not getting the right treatment. According to the BBC, NatCan said that while a minority of patients would be choosing not to have trea...
Read MoreAMMF founder awarded an Honorary Doctorate for services to medicine and science
Helen Morement, the founder and Chief Executive of AMMF - The Cholangiocarcinoma Charity has been awarded the honorary degree of Doctor of Science honoris causa from the University of Nottingham in recognition of her service to medicine and science over more than two decades. Helen Morement, CEO and founder of AMMF Helen was nominated for this prestigious degree by Professor Kevin Gaston, Profess...
Read MoreHope Bear on Holiday
#TeamAMMF love to see our supporters’ photos and invite you to share your summer snaps with us. So, let your Hope Bear photo bomb your fundraisers, relax with you on the beach or simply sit with you in a park. Whether you take our mascot up a mountain, on a plane, or on a day trip, we want to see and share your pictures.Together we can raise awareness!You can purchase yours at: https://ammf.org...
Read MoreA Year of Fundraising for 2023!
2023 has seen AMMF supporters go above and beyond with their fundraising, from organised events to sponsored challenges, we’ve been amazed by our fundraiser's creativity and commitment to raising funds for AMMF. Here is just a brief round-up of some of the events that have taken place over the year, and we thank each and every one of our supporters for their dedication and commitment to helping AMMF cont...
Read MoreAMMF’s 2023 highlights
by Helen Morement, CEO The year 2023 has been a momentous one for AMMF, with the charity’s continued expansion, changes and developments in many areas, and its continuing and growing work in Europe. As the charity has grown in recognition and influence, it became necessary to evolve from our original status as an unincorporated charity to that of a Charitable Incorporated Organisation...
Read MoreChristmas 2023
Following on from the success of last year, AMMF has once again partnered up with Visufund, and set up a virtual Christmas Tree, for our supporters to place a star or light on in memory of their loved ones lost to Cholangiocarcinoma for a small donation. As per last year, we’ll be running our Christmas tree campaign from the 1st of December until the 31st of December, and we would love all of our support...
Read More“Liver fluke related Cholangiocarcinoma”
A leading expert in the field of liver fluke related cholangiocarcinoma (CCA), Professor Ross Andrews, is the driving force behind the most comprehensive work yet on this subject: "Liver fluke, Opisthorchis viverrini related Cholangiocarcinoma" Editors: Narong Khuntikeo, Ross H Andrews, Trevor N Petney, Shahid A Khan Although considered relatively rare in the Western world, CCA has a very high inc...
Read MoreAMMF’s Change of Status
In 2002, AMMF was registered with the Charity Commission with the name, The Alan Morement Memorial Fund (registered charity no 1091915), and with the working title, AMMF. Because of the continuing growth of the charity, AMMF’s trustees recently made the decision that the charity should transition as a legal entity from its existing unincor...
Read MoreSnap for Summer 2023!
Summertime is here, and AMMF wants to have some fun! AMMF’s ‘Snap for Summer’ Photo competition will run from Saturday 15th July to the end of September. Whatever you’re planning this summer – at home or in far-flung places – you can take part in AMMF’s awareness-raising photo competition. Off on holiday, or simply on a trip to the local park, take something AMMF related with ...
Read MoreMoving that dial towards better recognition for CCA …
Despite all the work AMMF has done over the years to raise the awareness of cholangiocarcinoma (CCA) - this disease with an increasing incidence and one of the worst prognoses out there - there remains a lack of awareness and little interest with those who have the power to move that dial and fully acknowledge CCA for what it is, and to improve the future for all diagnosed who remain under-represented and ...
Read MoreAn Epic Cycle of LEJOG!
The Lands' End to John O’Groats cycle ride would have been a retirement holiday for Steve & Julie Hunter. They had planned to do this on their tandem & was on Julie’s “bucket list” of things she wanted to achieve. Sadly, it was not to be as Julie was diagnosed with cholangiocarcinoma in December 2020, and despite help and support from AMMF passed away nine months later. In her memory, Ste...
Read MoreOur Virtual Christmas Tree 2022
For Christmas 2022, we partnered with Visufund to create our very own AMMF virtual Christmas tree. We encouraged all our supporters to place a star or a light on our tree, in memory of their loved ones lost to cholangiocarcinoma. We were touched that so many of you got involved with making the tree as bright and as beautiful as possible and left so many wonderful tributes. Over 50 decorations were placed...
Read MoreChristmas 2022
This Christmas, AMMF has partnered up with Visufund, and set up a virtual Christmas Tree, for our supporters to place a star or light on in memory of their loved ones lost to Cholangiocarcinoma for a small donation. We’ll be running our Christmas tree campaign from the 1st December until the 31st, and would love all of our supporters, old and new to join us in remembering all those precious lives lost to ...
Read MoreA summer of fundraising 2022!
As the summer months draw to a close, here’s a look back on the highlights in our summer of fundraising: The Oakes Family The Oakes family hosted a charity ball in July in memory of family member Tony, who passed away from CC in 2021. The ball was a huge success and a great time was had by all! The money raised from the event has been donated to research into cholangiocarcinoma. Andy Spavins Andy and ...
Read MoreCCA Awareness Month 2022 – AMMF’s amazing supporters step it up!
For this year's CCA Awareness month, AMMF's fundraisers really did 'step it up' to help raise cholangiocarcinoma awareness! Getting out and about for AMMF After a couple of years of being 'locked-down', the opportunity to connect with the great outdoors and do some good, seem to resonate with our supporters. The physical challenges undertaken ranged from 100,000 steps a week to walking over 100 miles thro...
Read MoreAMMF Guest Post: Andy Spavins’ petition for more awareness of rare cancers
I have set up this petition in memory of my Dad, Mark Spavins, who passed away from Cholangiocarcinoma in August 2018. It is also in memory of everyone who has lost loved ones to cancer. Rare and very rare cancers account for just over half of diagnoses, yet awareness is very low. The number of people being diagnosed with rare cancers is increasing, with the age of individuals being affected decreasing. ...
Read MoreCholangiocarcinoma landscape in Europe: Diagnostic, prognostic and therapeutic insights from the ENSCCA Registry
In 2015, ENSCCA (European Network for the Study of Cholangiocarcinoma) was founded with the aim of creating a pan-European interdisciplinary cooperative network to address the problem of cholangiocarcinoma (CCA) at the basic, translational and clinical levels. Its first initiative was the creation of the ENSCCA Clinical Registry in 2016. CCA, also known as bile duct cancer, is a cancer that is frequen...
Read MoreAMMF supporter Sally Evans raises online petition in memory of her Dad.
When Sally Evans lost her father to cholangiocarcinoma earlier this year, she was determined to work towards raising the awareness of this devastating cancer. Here AMMF supporter Sally explains in her own words what she has done: “My dad died of bile duct cancer, in January of this year. Despite him going through lots of tests on a weekly basis, some were painful like having a bone marrow test, his ...
Read MoreThe 20 for 20 Challenge
Some cancers are well less known, but that doesn't mean they are any less important. After the success of last year's 20 for 20 campaign, AMMF has joined forces again with the collective to continue what we started. The Covid-19 pandemic led to a fall in the number of people diagnosed with all kinds of cancer. Fewer people came forward with symptoms and there were, and still are, delays or changes to trea...
Read MoreNICE approves pemigatinib for those with CCA and the FGFR2 fusion
“Today, 22 July 2021, the availability of pemigatinib marks a major milestone in the fight against cholangiocarcinoma, bringing new hope for our patients with this devastating type of liver cancer who have an FGFR2 genetic rearrangement. This advance, which requires our patients to have molecular testing, opens the door to gaining a much better understanding of the genetic footprint for this cancer an...
Read MoreA Mile or More For AMMF!
This Summer, we would like you to complete A Mile or More For AMMF! The challenge is simple, walk, run, jog, swim, cycle or even hop a mile or more to raise vital funds and awareness for cholangiocarcinoma. As restrictions are eased and we can explore the outside again, why not take advantage and support AMMF! At an average walking pace, a mile takes approx. 20 minutes to complete and we are all aw...
Read MoreThoughts on Cannabidiol Products
Cannabidiol, also known as CBD, is one of many chemicals found in the cannabis plant. It has been suggested many times and in many articles and forums as an alternative treatment and even as a cure for a variety of conditions and ills, including cancer. Many people with cancer attribute the management of their symptoms and side effects from their cancer treatments to their use of CBD as a complementary t...
Read More2021 Virgin Money London Marathon places
AMMF are delighted to announce that we have places available for our fundraisers in this year's London Marathon! We have been allocated one place in the public race in London and three places in the virtual race, which you can complete from anywhere on the same day! Virgin Money London Marathon 2021 - public run in London, Sunday 3rd October Our Silver Bond place holder, Daniel, has been wai...
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