Blog with AMMF
This is the place to share your story, your treatments, ups and downs, positives and negatives, and other news and anecdotes.
To start your Blog with AMMF, either on AMMF’s site or to link to your existing blog, send your details to firstname.lastname@example.org and we will let you have all the information you need.
Please note, any opinions expressed will be the author’s own and are not necessarily shared by AMMF. AMMF reserves the right to edit or decline any posts submitted.
“My journey so far with Cholangiocarcinoma”
One afternoon at work, I went to the bathroom and noticed my urine was the colour of stewed tea. I went to see my GP after work and was confirmed to be jaundice with no other symptoms. A blocked bile duct was diagnosed. I was referred to a GI and an ultrasound showed a stricture of the bile duct. Gallstones were ruled out, so it was either a cyst or a tumour …Read More
“Why this blog?”
“On the 4th August this year (“this year” being 2020) I was diagnosed with inoperable, Stage 3 Bile Duct Cancer, also known as Cholangiocarcinoma.
I cannot put into words how it feels to be told you have cancer and if I’m being honest, for the rest of that dreadful day, I felt nothing… I guess shock does that to you.
As the shock subsided, fear arrived in spades. What followed was days of furious Google searches into this disease, all of which made for dismal and depressing reading.
Bile duct cancer is a rare cancer and sadly, not usually diagnosed until it has reached an advanced stage. It is also typically diagnosed in those aged 60 and over, so even rarer that I would have this at the age of 45.”
Follow Megan Murphy’s blog at https://beatingbileductcancer.co.uk/blog/
“At last! They confirmed it was bile duct cancer.”
Judith struggled with bile duct problems all her life, which got increasingly more severe over the years. In 2015 she reached a point where she felt she just could not go on with the constant fatigue, stomach pains and weight loss. Despite surgery, chemotherapy, and endless consultant visits, it took until 2018 for Judith to finally get a clear diagnosis –bile duct cancer (cholangiocarcinoma) – and, at last, some effective treatment …
“I am no longer in pain, I feel stronger every day, and more importantly I now value every day …”
Judith shares her story here in her blog.
“My beautiful life”
“If the risk of getting cancer in a lifetime is 1 in 2 and I have cancer twice, I believe I have taken one for the team. You are very welcome!”
Since 2018, Sal has been telling her story through her blog in her own, inimitable way, openly sharing details of her treatments, how they make her feel, her reactions to her scans and consultations, as well as anecdotes and fun times – and turning negatives into positives.
“I’ve been touched by people reading my blog, it seems to be reaching people across the globe…. Hello India, Mauritius, Canada and Bahamas – you lifted me today! I’ve had a personal chat with two new friends who are also struggling with life’s challenges and it’s so heartwarming to know I could reach out and help others. Even when totally run down, confined to a heap in your bed, I know you can make a difference to someone, somewhere else in the world … and that’s a mighty uplifting fact on its own!!”
To read more of Sal’s Story, click here