AMMF News
Covid-19 and CCA – Patient Survey Report
In the summer of 2020, Cancer521, supported by its members, conducted an online survey of people with rare and less common cancers to understand the impact on them of the Covid-19 pandemic so far, including any changes to treatment and care and their experiences of shielding. More than 1,400 responses to the survey were received. AMMF, a member of Cancer52, took part in the survey, both in the set up and...
Read More20for20 Challenge – Cancer doesn’t stop for Covid
AMMF has joined forces with 19 other less common cancer charities to create a unique and exciting 20-day challenge. The 20for20 Challenge aim is to raise funds to make up the shortfall in our income due to the Covid-19 pandemic. Funds that are vital to enable us to continue with our work. The pandemic has led to delays to cancer diagnosis and treatment, which could lead to as many as 35,000...
Read MoreAMMF’s CCA Data Project – Poster presentation at EASL International Liver Congress 2020
AMMF has long considered a major reason for so little awareness of cholangiocarcinoma and so little progress towards early diagnosis and effective treatments, is the lack of robust data to support what we see every day in our work – increasing incidence, heartbreaking mortality levels, and an ever growing number of young adults being diagnosed. We know there are major problems with terminology, with co...
Read MoreSurvey of Patient Experiences during the COVID-19 Pandemic
AMMF and other members of the Cancer521 alliance of cancer charities and organisations have helped in the development of a survey of patients with rare and less common cancers to find out more about their experiences during the coronavirus pandemic. The survey is being organised by Cancer52, who will also analyse the results and share a full summary with all its charity members. The results of this surve...
Read MoreJoin AMMF’s Summer 20 Challenge!
AMMF is delighted to announce the launch of its Summer 20 Challenge! We are looking for supporters of all ages to join this year's summer campaign, to help raise funds to support research into cholangiocarcinoma. We want you to challenge yourself, your family and your friends to complete a '20' themed challenge. You can then donate your sponsorship direct to AMMF's JustGiving Summer 20 Challenge campaign pa...
Read MoreAMMF supporters take on The 2.6 Challenge
Sunday 26th April 2020, should have been the 40th Virgin Money London Marathon and one of the most prominent fundraising days of the year. However, the Covid-19 pandemic meant that the months of training and fundraising by charity supporters had to be put on hold. The nationwide 2.6 Challenge was an alternative and 'safe' way to engage supporters and to raise the vitally needed funds for charities across th...
Read MoreFDA approves Pemigatinib for CCA
The US pharmaceutical company, Incyte, has gained accelerated approval from the FDA (the US Food and Drug Administration), for their targeted therapy Pemazyre (pemigatinib) for the treatment of cholangiocarcinoma, (bile duct cancer)1. This follows the outcome of the clinical trial, FIGHT-202, in which adult patients with previously treated, unresectable locally advanced or metastatic cholangiocarcinoma w...
Read MoreJoin ‘The 2.6 Challenge’ and support AMMF!
Now more than ever, people with cholangiocarcinoma need support. Join the rest of the nation in 'The 2.6 Challenge', whether you’re running around the balcony for 2.6 miles, doing 26 press ups with the dog on your back or bench pressing 26 kilos with your children, we need your support! So, if you can make a donation (big or small), it would mean the world to us. You could even go one ste...
Read MoreNHS Cancer Programme team and COVID-19 updates
AMMF’s CEO, Helen Morement is attending the weekly virtual COVID-19 briefing meetings with the NHS Cancer Programme team ... Today’s meeting (07.04.2020) was chaired by David Fitzgerald (Programme Director, NHS Cancer Programme), Peter Johnson (National Clinical Director for Cancer, NHS England and NHS Improvement), and Cally Palmer (National Cancer Director for NHS England and NHS Improvement). ...
Read MoreAndrea’s AMMF Army reach new heights!
In February 2020, Andrea Sheardown and the #AndreasAMMFArmy tackled their biggest fundraising challenge for AMMF so far, trekking to Everest Base Camp! Having successfully scaled Mount Kilimanjaro in 2018 and cycling 450km from Vietnam to Cambodia in 2019, Andrea has always felt that Everest was ‘meant to be’! Along with her husband Chris, son Sam 16, sister Mandy and 11 other members of the #AndreasAMM...
Read MoreCOVID-19: An update from AMMF
This is an uncertain and worrying time for us all, but we realise that this must be especially so for all those with cholangiocarcinoma. AMMF is following government advice and, over the last couple of weeks, we have worked hard to put contingency plans in place to ensure our work can continue as smoothly as possible. AMMF’s team is now working remotely and the charity continues, as always, to do all w...
Read MoreAMMF Pets in Purple 2020 – The winner is……
AMMF's 'Pets in Purple' photo competition proved so popular last year that we knew we should do it again for this year's Awareness Month and we were certainly overwhelmed with all the wonderful entries! The idea was simple - the pet's photo with the most 'Likes' on AMMF's original Facebook, Twitter, Instagram and LinkedIn pages won. It was great to see all the 'like's' and 'comments' coming in and to s...
Read MoreFebruary CCA Awareness Month 2020 – Pets in Purple photo comp!
February is Cholangiocarcinoma Awareness Month and AMMF's ever popular 'Pets in purple' photo competition is back! The rules are the same as last year's... your pet must be sporting something in AMMF purple. Animals for AMMF – Your pets in Purple! We would love to see photos of your pets in purple. You can be creative, you can be inventive, you can be funny, so long as it’s purple. If you need som...
Read MoreAMMF London Marathon 2020 – Dan’s our man!
AMMF's Silver Bond Place Runner - London Marathon 2020 We are delighted to announce, Daniel Barron as the proud owner of the 'once in every 5 years' and very precious, AMMF London Marathon 2020 Silver Bond Place. Daniel made the successful winning application, securing his place to run in memory of his beloved younger sister, Claire, who sadly died of cholangiocarcinoma in December 2018. On Daniel's ...
Read MoreAMMF’s Ballot for London Marathon 2020
As Silver Bond holders with the London Marathon, AMMF has one guaranteed place every five years, and 2020 is our next year! We know we have many loyal supporters who entered the general ballot in the hope that they will win an own place to run for AMMF, so we've waited until the ballot results are out so that those who have been unsuccessful can have another chance to get a place - by entering AMMF's...
Read More“Summer Snaps” winner is announced!
"Summer Snaps" This summer we have loved seeing the awareness raising photos that have been submitted for our 2019 photo competition. The main rule was that something AMMF - t-shirt, bag, wristband, etc - should be visible in the photo. It was a difficult decision as this year's entries were all so good but finally we can reveal the winner! Well done to Poppy Turnbull and family, for their 'pun...
Read MoreAMMF’s Summer of ‘Fun’-raising ideas!
When the weather turns warmer and the days seem longer, the team at AMMF get the itch to be outdoors! What better way to use the space around us and all the 'extra' hours we seem to find, than spending time with family and friends, having fun but also making a difference? The summer holidays can be a long time to keep the kids happy and occupied and not everyone wants to venture abroad. So here are som...
Read MoreAMMF’S New ‘Summer Snaps’ Photo Competition
Show it, snap it, send it! New for 2019 - AMMF's 'Summer Snaps' Photo competition will run from 15th July to the end of September. Whatever you're planning this summer - at home or in far flung places - you can take part in AMMF's awareness raising photo competition. Show it, snap it, send it! Whether you're having a picnic, visiting the zoo, sightseeing in exotic places, or just relaxing on th...
Read MoreThe ABC-06 study – first results out …
The first results of the ABC-06 clinical trial were formally presented by Dr Angela Lamarca of The Christie NHS Foundation Trust at the American Society of Clinical Oncology (ASCO) annual meeting in Chicago on 2nd June 2019. ASCO hosts the largest global cancer conference with over 45,000 attendees, and the ABC-06 trial results were presented in front of an audience of approximately 5,000. Dr An...
Read MoreAMMF’s Amazing April!
AMMF has had an amazing fundraising April! Our supporters put the months of cold weather training behind them, to hit the ground running, on the streets of Manchester, Brighton and London. Marathon season was back and the first weekend in April saw AMMF being represented at the Manchester Marathon. With over 20,000 runners taking part, Andy Wall, who had already tackled the Great North Run and the Chester 1...
Read MoreAndrea’s epic Vietnam to Cambodia cycle ride
Not content with walking on fire or climbing Mount Kilimanjaro to raise funds for AMMF, Andrea Sheardown decided to challenge herself with an even more epic event this year! Along with her daughter, Amelia and a 16 strong #AndreasAMMFArmy, she took on a 450km cycle ride through Vietnam and Cambodia. Starting from Vietnam's Ho Chi Minh City on 17th February, the group cycled through remote rural villages and...
Read MoreIt’s a busy start to the fundraising year!
AMMF's 2019 fundraising year got off to a splash with some of our supporters deciding to take a New Years Day dip! Thank you to the Duckett family for braving the cold waters of Saundersfoot Bay to raise funds. The pictures were amazing and you all looked fantastic (even if a little bit cold). Well done everyone! February was Cholangiocarcinoma Awareness Month and AMMF joined forces with other charit...
Read MoreAMMF Pets in Purple – The results are in!
Throughout February Awareness Month this year, we've enjoyed seeing all the perfectly posed 'Pets in purple' photos that you have submitted for our competition. By showing their support for AMMF in purple, we hope the pets have helped to raise awareness and maybe, even raised a smile or two along the way. The winner was the pet with the most 'Likes' on AMMF's original Facebook post. The competition was h...
Read MoreCholangiocarcinoma Experts of the Future!
Twelve aspiring medics from the Imperial College London School of Medicine who were involved in the new second year ‘Clinical Research and Innovation’ module, were selected to take part in a cholangiocarcinoma research experience in Khon Kaen, Thailand, in the summer of 2018. Tom O’Connor and Tom Hughes, members of the group of twelve, had already forged strong bonds with the Khon Kaen team during ...
Read MoreGlobal Cholangiocarcinoma Alliance launched!
A new, collective voice for cholangiocarcinoma, the Global Cholangiocarcinoma Alliance (GCA) was heard for the first time on World Cholangiocarcinoma Day, 12 February, 2019. Plans were announced to form the world’s first global cholangiocarcinoma alliance back in September 2018, at AMMF’s international workshop held at Imperial College London and attended by the six inaugural partners of World Chol...
Read More
