AMMF News

The 20 for 20 Challenge

Some cancers are well less known, but that doesn't mean they are any less important. After the success of last year's 20 for 20 campaign, AMMF has joined forces again with the collective to continue what we started. The Covid-19 pandemic led to a fall in the number of people diagnosed with all kinds of cancer. Fewer people came forward with symptoms and there were, and still are, delays or changes to trea...

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NICE approves pemigatinib for those with CCA and the FGFR2 fusion

“Today, 22 July 2021, the availability of pemigatinib marks a major milestone in the fight against cholangiocarcinoma, bringing new hope for our patients with this devastating type of liver cancer who have an FGFR2 genetic rearrangement. This advance, which requires our patients to have molecular testing, opens the door to gaining a much better understanding of the genetic footprint for this cancer an...

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A Mile or More For AMMF!

This Summer, we would like you to complete A Mile or More For AMMF! The challenge is simple, walk, run, jog, swim, cycle or even hop a mile or more to raise vital funds and awareness for cholangiocarcinoma. As restrictions are eased and we can explore the outside again, why not take advantage and support AMMF! At an average walking pace, a mile takes approx. 20 minutes to complete and we are all aw...

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Thoughts on Cannabidiol Products

Cannabidiol, also known as CBD, is one of many chemicals found in the cannabis plant. It has been suggested many times and in many articles and forums as an alternative treatment and even as a cure for a variety of conditions and ills, including cancer. Many people with cancer attribute the management of their symptoms and side effects from their cancer treatments to their use of CBD as a complementary t...

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Join the #5KMay for AMMF!

  AMMF has teamed up with the creators of the viral lockdown 5k to launch this years new national    campaign: #5kMay - and we would absolutely love it if you could get involved to support us! The challenge is really simple: Participate in a 5k during May (run, walk, roll, hop - whatever you like) Donate £5 to our charity here Nominate 5 friends on social to take part too (remem...

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2021 Virgin Money London Marathon places

  AMMF are delighted to announce that we have places available for our fundraisers in this year's London Marathon! We have been allocated one place in the public race in London and three places in the virtual race, which you can complete from anywhere on the same day! Virgin Money London Marathon 2021 - public run in London, Sunday 3rd October Our Silver Bond place holder, Daniel, has been wai...

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Pets in Purple 2021 – Get creative with our ‘Purple pet pairing’ photo competition!

This February is Cholangiocarcinoma Awareness Month and for the third year AMMF’s ‘Pets in purple’ photo competition is back! We know you love sharing your creative photos of your ‘purple’ pets and with most of us being at home with our furry friends at the moment, the team at AMMF thought that YOU, the owners, should get involved! Animals for AMMF – Purple Pet Pairing! Apparently, ‘twinning...

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AMMF’s CCA Patient & Carer Information Day

AMMF’s virtual Cholangiocarcinoma (CCA) Information Day, especially for patients and carers, took place on Thursday, 29 October 2020. As well our most important attendees - those who are living with CCA, and those who care for loved ones with CCA - there were clinical nurse specialists who wanted to learn more about cholangiocarcinoma and industry members, whose companies are working hard to develop drug...

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Patient Information Sheets – Chemo Regimes

AMMF is pleased to have worked with Dr Chiara Braconi of The Institute of Cancer Sciences, University of Glasgow, on producing a series of Patient Information Sheets for chemotherapy regimes for those with cholangiocarcinoma.  The series has been endorsed by ENS-CCA¹, under their Cost Action project. All the information sheets may now be downloaded here or from AMMF's Treatment Options section of the w...

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Covid-19 and CCA – Patient Survey Report

In the summer of 2020, Cancer521, supported by its members, conducted an online survey of people with rare and less common cancers to understand the impact on them of the Covid-19 pandemic so far, including any changes to treatment and care and their experiences of shielding.  More than 1,400 responses to the survey were received. AMMF, a member of Cancer52, took part in the survey, both in the set up and...

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20for20 Challenge – Cancer doesn’t stop for Covid

  AMMF has joined forces with 19 other less common cancer charities to create a unique and exciting 20-day challenge. The 20for20 Challenge aim is to raise funds to make up the shortfall in our income due to the Covid-19 pandemic. Funds that are vital to enable us to continue with our work. The pandemic has led to delays to cancer diagnosis and treatment, which could lead to as many as 35,000...

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AMMF’s CCA Data Project – Poster presentation at EASL International Liver Congress 2020

AMMF has long considered a major reason for so little awareness of cholangiocarcinoma and so little progress towards early diagnosis and effective treatments, is the lack of robust data to support what we see every day in our work – increasing incidence, heartbreaking mortality levels, and an ever growing number of young adults being diagnosed. We know there are major problems with terminology, with co...

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Prudential RideLondon goes virtual and AMMF needs you to get on your bike!

This August get on your bike - or scooter, skateboard, trike, tandem, unicycle, penny farthing - to fundraise for AMMF and help save the UK's charities! Prudential RideLondon is the world's greatest festival of cycling and has helped to raise more than £77 million for thousands of charities. The Covid-19 pandemic means that the festival can't go ahead as planned this year and this has had a devastat...

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Survey of Patient Experiences during the COVID-19 Pandemic

AMMF and other members of the Cancer521 alliance of cancer charities and organisations have helped in the development of a survey of patients with rare and less common cancers to find out more about their experiences during the coronavirus pandemic. The survey is being organised by Cancer52, who will also analyse the results and share a full summary with all its charity members. The results of this surve...

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Join AMMF’s Summer 20 Challenge!

AMMF is delighted to announce the launch of its Summer 20 Challenge! We are looking for supporters of all ages to join this year's summer campaign, to help raise funds to support research into cholangiocarcinoma. We want you to challenge yourself, your family and your friends to complete a '20' themed challenge. You can then donate your sponsorship direct to AMMF's JustGiving Summer 20 Challenge campaign pa...

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AMMF supporters take on The 2.6 Challenge

Sunday 26th April 2020, should have been the 40th Virgin Money London Marathon and one of the most prominent fundraising days of the year. However, the Covid-19 pandemic meant that the months of training and fundraising by charity supporters had to be put on hold. The nationwide 2.6 Challenge was an alternative and 'safe' way to engage supporters and to raise the vitally needed funds for charities across th...

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FDA approves Pemigatinib for CCA

The US pharmaceutical company, Incyte, has gained accelerated approval from the FDA (the US Food and Drug Administration), for their targeted therapy Pemazyre (pemigatinib) for the treatment of cholangiocarcinoma, (bile duct cancer)1. This follows the outcome of the clinical trial, FIGHT-202, in which adult patients with previously treated, unresectable locally advanced or metastatic cholangiocarcinoma w...

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Join ‘The 2.6 Challenge’ and support AMMF!

  Now more than ever, people with cholangiocarcinoma need support. Join the rest of the nation in 'The 2.6 Challenge', whether you’re running around the balcony for 2.6 miles, doing 26 press ups with the dog on your back or bench pressing 26 kilos with your children, we need your support! So, if you can make a donation (big or small), it would mean the world to us. You could even go one ste...

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NHS Cancer Programme team and COVID-19 updates

AMMF’s CEO, Helen Morement is attending the weekly virtual COVID-19 briefing meetings with the NHS Cancer Programme team ... Today’s meeting (07.04.2020) was chaired by David Fitzgerald (Programme Director, NHS Cancer Programme), Peter Johnson (National Clinical Director for Cancer, NHS England and NHS Improvement), and Cally Palmer (National Cancer Director for NHS England and NHS Improvement). ...

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Andrea’s AMMF Army reach new heights!

In February 2020, Andrea Sheardown and the #AndreasAMMFArmy tackled their biggest fundraising challenge for AMMF so far, trekking to Everest Base Camp! Having successfully scaled Mount Kilimanjaro in 2018 and cycling 450km from Vietnam to Cambodia in 2019, Andrea has always felt that Everest was ‘meant to be’! Along with her husband Chris, son Sam 16, sister Mandy and 11 other members of the #AndreasAMM...

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COVID-19: An update from AMMF

This is an uncertain and worrying time for us all, but we realise that this must be especially so for all those with cholangiocarcinoma. AMMF is following government advice and, over the last couple of weeks, we have worked hard to put contingency plans in place to ensure our work can continue as smoothly as possible.  AMMF’s team is now working remotely and the charity continues, as always, to do all w...

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AMMF Pets in Purple 2020 – The winner is……

AMMF's 'Pets in Purple' photo competition proved so popular last year that we knew we should do it  again for this year's Awareness Month and we were certainly overwhelmed with all the wonderful entries! The idea was simple - the pet's photo with the most 'Likes' on AMMF's original Facebook, Twitter, Instagram and LinkedIn pages won. It was great to see all the 'like's' and 'comments' coming in and to s...

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February CCA Awareness Month 2020 – Pets in Purple photo comp!

February is Cholangiocarcinoma Awareness Month and AMMF's ever popular 'Pets in purple' photo competition is back! The rules are the same as last year's... your pet must be sporting something in AMMF purple. Animals for AMMF – Your pets in Purple! We would love to see photos of your pets in purple. You can be creative, you can be inventive, you can be funny, so long as it’s purple. If you need som...

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AMMF London Marathon 2020 – Dan’s our man!

AMMF's Silver Bond Place Runner - London Marathon 2020 We are delighted to announce, Daniel Barron as the proud owner of the 'once in every 5 years' and very precious, AMMF London Marathon 2020 Silver Bond Place. Daniel made the successful winning application, securing his place to run in memory of his beloved younger sister, Claire, who sadly died of cholangiocarcinoma in December 2018. On Daniel's ...

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AMMF’s Ballot for London Marathon 2020

As Silver Bond holders with the London Marathon, AMMF has one guaranteed place every five years, and 2020 is our next year! We know we have many loyal supporters who entered the general ballot in the hope that they will win an own place to run for AMMF, so we've waited until the ballot results are out so that those who have been unsuccessful can have another chance to get a place - by entering AMMF's...

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