AMMF News

A Year of Fundraising for 2023!

2023 has seen AMMF supporters go above and beyond with their fundraising, from organised events to sponsored challenges, we’ve been amazed by our fundraiser's creativity and commitment to raising funds for AMMF. Here is just a brief round-up of some of the events that have taken place over the year, and we thank each and every one of our supporters for their dedication and commitment to helping AMMF cont...

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AMMF’s 2023 highlights

by Helen Morement, CEO The year 2023 has been a momentous one for AMMF, with the charity’s continued expansion, changes and developments in many areas, and its continuing and growing work in Europe.   As the charity has grown in recognition and influence, it became necessary to evolve from our original status as an unincorporated charity to that of a Charitable Incorporated Organisation...

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Christmas 2023

Following on from the success of last year, AMMF has once again partnered up with Visufund, and set up a virtual Christmas Tree, for our supporters to place a star or light on in memory of their loved ones lost to Cholangiocarcinoma for a small donation. As per last year, we’ll be running our Christmas tree campaign from the 1st of December until the 31st of December, and we would love all of our support...

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“Liver fluke related Cholangiocarcinoma”

A leading expert in the field of liver fluke related cholangiocarcinoma (CCA), Professor Ross Andrews, is the driving force behind the most comprehensive work yet on this subject: "Liver fluke, Opisthorchis viverrini related Cholangiocarcinoma" Editors: Narong Khuntikeo, Ross H Andrews, Trevor N Petney, Shahid A Khan Although considered relatively rare in the Western world, CCA has a very high inc...

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AMMF’s Change of Status

In 2002, AMMF was registered with the Charity Commission with the name, The Alan Morement Memorial Fund (registered charity no 1091915), and with the working title, AMMF.             Because of the continuing growth of the charity, AMMF’s trustees recently made the decision that the charity should transition as a legal entity from its existing unincor...

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Snap for Summer 2023!

Summertime is here, and AMMF wants to have some fun! AMMF’s ‘Snap for Summer’ Photo competition will run from Saturday 15th July to the end of September. Whatever you’re planning this summer – at home or in far-flung places – you can take part in AMMF’s awareness-raising photo competition.   Off on holiday, or simply on a trip to the local park, take something AMMF related with ...

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Moving that dial towards better recognition for CCA …

Despite all the work AMMF has done over the years to raise the awareness of cholangiocarcinoma (CCA) - this disease with an increasing incidence and one of the worst prognoses out there - there remains a lack of awareness and little interest with those who have the power to move that dial and fully acknowledge CCA for what it is, and to improve the future for all diagnosed who remain under-represented and ...

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An Epic Cycle of LEJOG!

The Lands' End to John O’Groats cycle ride would have been a retirement holiday for Steve & Julie Hunter. They had planned to do this on their tandem & was on Julie’s “bucket list” of things she wanted to achieve. Sadly, it was not to be as Julie was diagnosed with cholangiocarcinoma in December 2020, and despite help and support from AMMF passed away nine months later. In her memory, Ste...

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Our Virtual Christmas Tree 2022

For Christmas 2022, we partnered with Visufund to create our very own AMMF virtual Christmas tree. We encouraged all our supporters to place a star or a light on our tree, in memory of their loved ones lost to cholangiocarcinoma. We were touched that so many of you got involved with making the tree as bright and as beautiful as possible and left so many wonderful tributes. Over 50 decorations were placed...

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Christmas 2022

This Christmas, AMMF has partnered up with Visufund, and set up a virtual Christmas Tree, for our supporters to place a star or light on in memory of their loved ones lost to Cholangiocarcinoma for a small donation. We’ll be running our Christmas tree campaign from the 1st December until the 31st, and would love all of our supporters, old and new to join us in remembering all those precious lives lost to ...

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A summer of fundraising 2022!

As the summer months draw to a close, here’s a look back on the highlights in our summer of fundraising: The Oakes Family The Oakes family hosted a charity ball in July in memory of family member Tony, who passed away from CC in 2021. The ball was a huge success and a great time was had by all! The money raised from the event has been donated to research into cholangiocarcinoma. Andy Spavins Andy and ...

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CCA Awareness Month 2022 – AMMF’s amazing supporters step it up!

For this year's CCA Awareness month, AMMF's fundraisers really did 'step it up' to help raise cholangiocarcinoma awareness! Getting out and about for AMMF After a couple of years of being 'locked-down', the opportunity to connect with the great outdoors and do some good, seem to resonate with our supporters. The physical challenges undertaken ranged from 100,000 steps a week to walking over 100 miles thro...

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AMMF Guest Post: Andy Spavins’ petition for more awareness of rare cancers

I have set up this petition in memory of my Dad, Mark Spavins, who passed away from Cholangiocarcinoma in August 2018. It is also in memory of everyone who has lost loved ones to cancer. Rare and very rare cancers account for just over half of diagnoses, yet awareness is very low. The number of people being diagnosed with rare cancers is increasing, with the age of individuals being affected decreasing. ...

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Cholangiocarcinoma landscape in Europe: Diagnostic, prognostic and therapeutic insights from the ENSCCA Registry

In 2015, ENSCCA (European Network for the Study of Cholangiocarcinoma) was founded with the aim of creating a pan-European interdisciplinary cooperative network to address the problem of cholangiocarcinoma (CCA) at the basic, translational and clinical levels.  Its first initiative was the creation of the ENSCCA Clinical Registry in 2016.  CCA, also known as bile duct cancer, is a cancer that is frequen...

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AMMF supporter Sally Evans raises online petition in memory of her Dad.

When Sally Evans lost her father to cholangiocarcinoma earlier this year, she was determined to work towards raising the awareness of this devastating cancer. Here AMMF supporter Sally explains in her own words what she has done: “My dad died of bile duct cancer, in January of this year. Despite him going through lots of tests on a weekly basis, some were painful like having a bone marrow test, his ...

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The 20 for 20 Challenge

Some cancers are well less known, but that doesn't mean they are any less important. After the success of last year's 20 for 20 campaign, AMMF has joined forces again with the collective to continue what we started. The Covid-19 pandemic led to a fall in the number of people diagnosed with all kinds of cancer. Fewer people came forward with symptoms and there were, and still are, delays or changes to trea...

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NICE approves pemigatinib for those with CCA and the FGFR2 fusion

“Today, 22 July 2021, the availability of pemigatinib marks a major milestone in the fight against cholangiocarcinoma, bringing new hope for our patients with this devastating type of liver cancer who have an FGFR2 genetic rearrangement. This advance, which requires our patients to have molecular testing, opens the door to gaining a much better understanding of the genetic footprint for this cancer an...

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A Mile or More For AMMF!

This Summer, we would like you to complete A Mile or More For AMMF! The challenge is simple, walk, run, jog, swim, cycle or even hop a mile or more to raise vital funds and awareness for cholangiocarcinoma. As restrictions are eased and we can explore the outside again, why not take advantage and support AMMF! At an average walking pace, a mile takes approx. 20 minutes to complete and we are all aw...

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Thoughts on Cannabidiol Products

Cannabidiol, also known as CBD, is one of many chemicals found in the cannabis plant. It has been suggested many times and in many articles and forums as an alternative treatment and even as a cure for a variety of conditions and ills, including cancer. Many people with cancer attribute the management of their symptoms and side effects from their cancer treatments to their use of CBD as a complementary t...

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2021 Virgin Money London Marathon places

  AMMF are delighted to announce that we have places available for our fundraisers in this year's London Marathon! We have been allocated one place in the public race in London and three places in the virtual race, which you can complete from anywhere on the same day! Virgin Money London Marathon 2021 - public run in London, Sunday 3rd October Our Silver Bond place holder, Daniel, has been wai...

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Pets in Purple 2021 – Get creative with our ‘Purple pet pairing’ photo competition!

This February is Cholangiocarcinoma Awareness Month and for the third year AMMF’s ‘Pets in purple’ photo competition is back! We know you love sharing your creative photos of your ‘purple’ pets and with most of us being at home with our furry friends at the moment, the team at AMMF thought that YOU, the owners, should get involved! Animals for AMMF – Purple Pet Pairing! Apparently, ‘twinning...

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AMMF’s CCA Patient & Carer Information Day

AMMF’s virtual Cholangiocarcinoma (CCA) Information Day, especially for patients and carers, took place on Thursday, 29 October 2020. As well our most important attendees - those who are living with CCA, and those who care for loved ones with CCA - there were clinical nurse specialists who wanted to learn more about cholangiocarcinoma and industry members, whose companies are working hard to develop drug...

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Patient Information Sheets – Chemo Regimes

AMMF is pleased to have worked with Dr Chiara Braconi of The Institute of Cancer Sciences, University of Glasgow, on producing a series of Patient Information Sheets for chemotherapy regimes for those with cholangiocarcinoma.  The series has been endorsed by ENS-CCA¹, under their Cost Action project. All the information sheets may now be downloaded here or from AMMF's Treatment Options section of the w...

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Covid-19 and CCA – Patient Survey Report

In the summer of 2020, Cancer521, supported by its members, conducted an online survey of people with rare and less common cancers to understand the impact on them of the Covid-19 pandemic so far, including any changes to treatment and care and their experiences of shielding.  More than 1,400 responses to the survey were received. AMMF, a member of Cancer52, took part in the survey, both in the set up and...

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20for20 Challenge – Cancer doesn’t stop for Covid

  AMMF has joined forces with 19 other less common cancer charities to create a unique and exciting 20-day challenge. The 20for20 Challenge aim is to raise funds to make up the shortfall in our income due to the Covid-19 pandemic. Funds that are vital to enable us to continue with our work. The pandemic has led to delays to cancer diagnosis and treatment, which could lead to as many as 35,000...

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