About AMMF – The Cholangiocarcinoma Charity

AMMF – The Cholangiocarcinoma Charity

Founded in 2002, AMMF was the world’s first charity dedicated solely to cholangiocarcinoma (bile duct cancer). Today, AMMF remains the UK’s only cholangiocarcinoma charity, now working nationally and across Europe, as well as actively collaborating globally.

AMMF provides information and support to those who need it, campaigns to raise awareness of this devastating disease, and encourages and supports specialised research teams in their work towards better diagnostic techniques and treatments and, ultimately a cure.

Over recent years an enormous and extremely worrying worldwide increase in cholangiocarcinoma’s incidence has been noted. Latest figures show that in 2019 in England alone 2,635 people were diagnosed with cholangiocarcinoma, and in the same year the mortality figure was 2,754 (recorded mortality higher than incidence). (Acknowledgement: National Cancer Registration and Analysis Service, NHS Digital). The incidence appears to be increasing across all age groups, including younger people, and the cause of this ongoing increase is unknown. Much more research is desperately needed.

The Work of AMMF – An Overview

Shown for the first time at AMMF’s conference on 10th May, 2018, this video encapsulates the work and ethos of AMMF, the UK’s only cholangiocarcinoma charity.

AMMF’s Brochure

AMMF’s brochure is available in two versions – a printed version and a downloadable version.

AMMF’s Brochure

Simple and straightforward, this 6-page brochure contains information on AMMF and its aims, and provides details on cholangiocarcinoma in an easy to understand way.

To download a copy of AMMF’s brochure, click here

If you would like some printed copies to use at a fundraising event, for your hospital’s Liver Department, for your CNS, doctor and/or consultant, or for your GP practice, please email [email protected] with how many you would like and your postal address, and we’ll get them sent off to you.


AMMF and the Charity Commission

Since 2002, when the charity was first registered with the Charity Commission (reg no 1091915), it has used the working title, AMMF.

More recently, and because of the continuing growth of the charity, the charity’s legal status transitioned from its original unincorporated registered charity status to that of a Charitable Incorporated Organisation.

As a Charitable Incorporated Organisation, AMMF had to be re-registered with the Charity Commission and has a new registered number, 1198095.  The original charity and its registered number will always remain in existence, with all records submitted to the Charity Commission still available on the Commission’s website, but it is now very much in the background.

The CIO is officially known as: AMMF – The Cholangiocarcinoma Charity, with the registered charity number: 1198095.

For further information on AMMF’s change of legal status, see: https://ammf.org.uk/2023/08/16/ammfs-change-of-status/

April 2024