For regularly updated information and advice on the coronavirus (COVID-19) from AMMF, along with useful links to the appropriate areas of the NHS, PHE, Government and WHO websites, including advice on funerals, just click here
Cholangiocarcinoma Support (UK & Europe)
AMMF has a private space on Facebook for all whose lives have been touched by cholangiocarcinoma to share their concerns, information, knowledge and friendship with the cholangiocarcinoma family throughout the UK and Europe, and across the globe.
Listed below are UK organisations and web-based resources for patients, families and caregivers that may be helpful.
The British Liver Trust
The British Liver Trust is a national charity working to reduce the impact of liver disease in the UK through support, information and research.
Live better with
An online shop with hundreds of “handpicked products that help ease symptoms and side effects, and improve the quality of day-to-day life.”
Look Good Feel Better
Helping to support women with cancer by offering free expert workshops and advice on appearance-related topics such as skincare, make-up, wig selection and styling, scarf tying, nail care.
Macmillan Cancer Relief
Provides expert information with practical and emotional support.
With locations planned across the UK, Maggie’s Centre is a place to turn to for free help with any of the problems, small or large, associated with cancer.
Marie Curie Cancer Care
The UK’s most comprehensive cancer care charity.
Penny Brohn Cancer Care
(formerly The Bristol Cancer Help Centre) Leaders in the field of holistic cancer care. This organisation offers a wealth of information to those with cancer, and to those who support them, including counselling, healing, relaxation, and nutrition advice.
PSC (Primary Sclerosing Cholangitis) is a rare autoimmune disease of the bile ducts with no known cure. It is also one of the known risk factors for cholangiocarcinoma. 8% – 30% of adults with PSC will develop this cancer. PSC Support offers help to anyone affected by PSC via their informative website, email or phone.
BME Cancer Communities (BMECC)
BME Cancer Communities aims to preserve and protect the health of people in particular but not exclusively from Black and Minority Ethnic (BME) and low-income communities living with or affected by cancer.
Gift of a Wedding
Gift of a Wedding is a charity which hopes to bring joy, love and happiness to those with a terminal or life-shortening illness by gifting weddings and vow renewals. Their aim is to create a no-fuss, central focal point for people with a terminal or life-shortening illness who wish to marry.
For Helpful links on the topics of Dying and Bereavement, click here.
Now including information on the government’s funeral restrictions during
the COVID-19 pandemic.
Specialist Hotels, Travel/Medical Insurance
The Grove – Bournemouth
A unique holiday hotel for cancer patients and those with life threatening illnesses. Carers, families and friends are all welcome.
Hope House – Whitehead, Co Antrim, Northern Ireland
Hope House offers free self-catering accommodation in a peaceful setting for adults with a recent diagnosis of cancer and for those who care for them.
AMMF has no relationship with any of the organisations listed here, other than the reciprocal imparting of information. Links are provided for information only.