Uncategorized Archives

Moving that dial towards better recognition for CCA …

Despite all the work AMMF has done over the years to raise the awareness of cholangiocarcinoma (CCA) - this disease with an increasing incidence and one of the worst prognoses out there - there remains a lack of awareness and little interest with those who have the power to move that dial and fully acknowledge CCA for what it is, and to improve the future for all diagnosed who remain under-represented and ...

A summer of fundraising 2022!

As the summer months draw to a close, here’s a look back on the highlights in our summer of fundraising: The Oakes Family The Oakes family hosted a charity ball in July in memory of family member Tony, who passed away from CC in 2021. The ball was a huge success and a great time was had by all! The money raised from the event has been donated to research into cholangiocarcinoma. Andy Spavins Andy and ...

Andrea’s epic Vietnam to Cambodia cycle ride

Not content with walking on fire or climbing Mount Kilimanjaro to raise funds for AMMF, Andrea Sheardown decided to challenge herself with an even more epic event this year! Along with her daughter, Amelia and a 16 strong #AndreasAMMFArmy, she took on a 450km cycle ride through Vietnam and Cambodia. Starting from Vietnam's Ho Chi Minh City on 17th February, the group cycled through remote rural villages and...

PHOTOSTENT-02 Report is published

The findings of the multicentre PHOTOSTENT-02 trial¹ (which ended in 2012) have now been published. This study investigated the possible benefits of the use of stenting plus photodynamic therapy (PDT)² against stenting alone in those with obstructive jaundice caused by cholangiocarcinoma (bile duct cancer or biliary tract cancer (BTC)). It seems that those patients who received PDT in addition to st...

UK contact numbers for medical advice during the holidays

As the long festive break begins, a reminder for all cholangiocarcinoma patients and their carers in the UK – if you have medical concerns during Christmas and New Year holidays, especially if you are undergoing treatment, first try the contact numbers you will have been given by your hospital or CNS (clinical nurse specialist) or if they are not available, for help and advice contact: ENGLAND - N...

AMMF in Thailand 2016

The incidence of cholangiocarcinoma is increasing, not only in the UK but throughout the world. It is certainly a global problem, but Thailand has the world's highest incidence of this disease, with the Isaan Province in the north east of the country being the epicentre. Following the 3-day international cholangiocarcinoma workshop in Khon Kaen in north east Thailand in 2014, which AMMF attended, and w...

Canopies UK Choose AMMF

We are delighted to report that Canopies UK, the UK's leading supplier of outdoor canopies, has chosen AMMF as their charity to support. Jason Eastwood, Sales Director at Canopies UK, said “We’ve been discussing supporting a charity for some time, and I’m glad to say it was a unanimous decision - we would like to support AMMF.” Since losing his wife, Kelly, to cholangiocarcinoma in 2011, Jason a...

Cancer52 Annual Review 2012

Cancer52, the organisation providing “the common voice for less common cancers”, has made substantial progress in the short years since its inception and is dedicated to ensuring that those representing rare and less common cancers do not go unheard. They believe that rare and less common cancers must have a presence and a voice within every national cancer initiative. It is one of their aims to pr...

Dr Zabron’s Mayo Report

AMMF's Research Fellow, Dr Abigail Zabron, visits the Mayo Clinic, USA Dr Abigail Zabron, the Imperial College London Research Fellow funded by AMMF*, was awarded the Dame Shelia Sherlock travelling fellowship in Hepatology 2012. This enabled her to spend a month at the Mayo Clinic, Minnesota, USA, last autumn. Dr Zabron's hosts were Professor Greg Gores and Dr Lewis Roberts, both clinician-scientists w...

“Our CC Family” Launches Today

There is a new section on AMMF's website, Our CC Family ... This is a family photo pinboard for everyone to use. If your life has been touched by CC in any way - if you’re a patient, carer, friend, family member, supporter, fundraiser – then it’s for you. We want to show that it’s real people who are affected by this disease – and give them a chance to say something about it … (To go to...

CC Awareness Month 2013 Press Release

At the start of this year's Cholangiocarcinoma Awareness Month, AMMF is circulating a press release drawing attention to the recently published Guidelines for the Diagnosis and Treatment of Cholangiocarcinoma in the UK, Drawn up by a group of leading GI specialists, and developed with the support of AMMF and The British Liver Trust, these guidelines have been comprehensively updated for the first time i...

Chris Allum’s Memorial Football Match

Chris Allum ran the London Marathon earlier this year for AMMF in memory of his father, Charlie Allum, who died from cholangiocarcinoma in June 2011. If you have read our marathon report, you will see that Chris has written very movingly of his experience of taking on this event, how he had a photo of himself and his Dad printed on the back of his running vest, and how he kept his Dad close to him throug...

AMMF & The London Marathon

AMMF is a Silver Bond holder with the Virgin London Marathon, which sounds good, but actually means we have just one guaranteed place every five years! So, each year we need runners who are successful in the ballot to come forward to run and fundraise for AMMF in one of the biggest and most important fundraising events of the year. In 2011, eight of our supporters entered the ballot, but only one was al...

February’s FB Guest Posts

During February's Cholangiocarcinoma Awareness Month, we had a Guest Post of the Day on AMMF's Facebook page, and these posts provided some incredible stories of love, courage and support, of so many people lost to this ruthless disease, and of the appalling lack of knowledge there is of cholangiocarcinoma. We decided these posts shouldn't just disappear into cyberspace, so they have been gathered togeth...