My boyfriend got diagnosed

Discussion Forum Discussion Forum Introductions My boyfriend got diagnosed

This topic contains 1 reply, has 2 voices, and was last updated by  Julie_ammf 6 days, 6 hours ago.

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  • #15018

    stevie
    Participant

    Dear Everyone

    My boyfriend Steve been told 6 weeks ago after a CT scan that he has liver cancer and last monday 2nd of september he was told it’s bile duct cancer.

    Spreding to the liver and peritoneal as well.

    He has been seen by a consultant once only who told us he has 6-12 months to live.

    He’s 47, fit, slim and otherwise very healthy.

    The only treatment option apparently chemotherapy that will prolong his life maybe 2 months.

    We would like 2nd  opinions and seen by other specialists, consider clinical trials…etc, what ever we can but we’re hitting walls.

    Please advise us what can we do, we can’t just accept this one opinion!

    Looking forward to replies

    Thank you and we wish the best to everyone!

    Including us and a strong smile to all

     

    #15019

    Julie_ammf
    Moderator

    Dear Stevie

    Welcome to AMMF’s forum and let me start by saying how sorry we are to hear that you boyfriend has had a recent diagnosis of cholangiocarcinoma.

    It is suggested that patients who have received a diagnosis of cholangiocarcinoma, unless already under the care of a specialist experienced with cholangiocarcinoma at a known specialist centre, should ask to be referred for a second opinion with a named consultant of their choice, to ensure their diagnosis is correct and/or for reassurance that the treatments recommended are the best options for them.

    For referral information, see: http://ammf.org.uk/referral-information/

    To see AMMF’s list of specialist centres in the UK – which is not exhaustive, and is being updated and added to on a continuing basis – go to: http://ammf.org.uk/specialist-treatment-centres/

    For clinical trials go to: https://ammf.org.uk/clinical-trials/

    I hope the above is helpful for you, but if you have any other questions you think we can answer please get in touch via the forum or email info@ammf.org.uk

    Kind regards

    Julie

    Please note it is not appropriate for AMMF to give medical advice or recommendations, and all details provided are for information purposes only.

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