AMMF News

Waiting for UK Guidelines

Guidelines for the Diagnosis and Treatment of CC in the UK – An Update (or an update on the update …) For the first time in ten years, the Guidelines for the Diagnosis and Treatment of Cholangiocarcinoma in the UK have been updated by a group of GI specialists*.  These are evidence based Guidelines, and the focus is on currently available medical literature. The intention is that these Guidelines ...

Read More

International CC Guidelines

ILCA Plans International Guidelines on Cholangiocarcinoma There is often considerable confusion over the treatment paths for cholangiocarcinoma that seem to differ from country to country. It is, therefore, very welcome news that The International Liver Cancer Association are producing their first ever International Guidelines on liver cancer and have chosen to do this on cholangiocarcinoma. There will ...

Read More

CC Meeting Report

NCRI* Hepatobiliary subgroup meeting 1st March and subsequent meeting with Professor John Primrose, 7th March 2012. AMMF has been asked to become a member of the NCRI Hepatobiliary subgroup in order to represent cholangiocarcinoma patients. Amongst those attending the meeting on 1st March were Dr John Bridgewater, Professor John Primrose, Dr Hassan Malik, Dr Harpreet Wasan, Dr Juan Valle, Professor Dan Pal...

Read More

February’s FB Guest Posts

During February's Cholangiocarcinoma Awareness Month, we had a Guest Post of the Day on AMMF's Facebook page, and these posts provided some incredible stories of love, courage and support, of so many people lost to this ruthless disease, and of the appalling lack of knowledge there is of cholangiocarcinoma. We decided these posts shouldn't just disappear into cyberspace, so they have been gathered togeth...

Read More

Cup Cake CChallenge!

Despite being Practice Manager at a busy GP practice in Devon, Helen Tanner of Barnstaple had never heard of cholangiocarcinoma until she was diagnosed with it in 2010. Following her recovery from surgery, Helen has been a staunch supporter of AMMF and is doing all she can to raise awareness. Helen's staff at the practice have certainly taken up the cause with her. Their most recent fundraiser was a Cup ...

Read More

Marcella’s CCampaign

Marcella Smith, who lost her husband Stewart to CC just last September, promised herself she would do all she could to raise the awareness of CC and to support AMMF. And she has certainly remained true to her word. Through her influence several fundraising activities have already taken place, and during February’s Awareness Month she was interviewed several times, appearing on BBC Radio Coventry & ...

Read More

Sizzling Sausages!

or The Cooked Breakfast CChallenge Report ... Laura Smith chose to support Awareness Month with a Cooked Breakfast CChallenge,raising funds for AMMF in memory of her uncle, Stewart Smith, who died from CC in September last year. On Friday, 24th February, Laura’s employer, GVA in Birmingham, funded the food and those taking part paid set prices for different breakfast items, full English, sausage sandw...

Read More

Sharon talks to Wessex FM

Sharon Solomon has courageously used her personal experience of cholangiocarcinoma to raise awareness in the Dorset area. In an interview with Wessex FM, Sharon described her own journey through her diagnosis of CC, her surgery, and now as she waits for the results of further tests. Many thanks go to Sharon for this massive boost to CC awareness and the work of AMMF. The interview was broadcast th...

Read More

Helen says, “I’m lucky” …

Helen Tanner of Barnstaple, had never heard of cholangiocarcinoma until she was diagnosed with it in 2010. Initially, she didn't feel particularly ill; the only indication that something might be awry were a "couple of strange symptoms which didn't feel quite right."  As we know, CC can be very difficult to detect and is often diagnosed too late for surgery, which is currently the only treatment availab...

Read More

CC between Robbie and Mick …

Day 15 of Cholangiocarcinoma Awareness Month, and CC gets another radio airing - this time sandwiched between Robbie Williams and the Rolling Stones on BBC Essex! AMMF's Helen Morement was interviewed by Etholle George on the Dave Monk morning programme - another great chance to raise the awareness of CC,  AMMF and its work, and to talk about the CChallenge. To hear the interview, click here,  and g...

Read More

Nicola’s Tribute

During February, Cholangiocarcinoma Awareness Month, we have been having a Guest Post each day on AMMF's Facebook page.  Today's was by Nicola Orthmani and she described it as, "A loving daughter's CC journey from right by her Father's side from beginning to a devastating end…" To read this very moving tribute to her father, Charlie Allum, and the description of the journey CC took them on, please cli...

Read More

Transplantation – current thoughts

Dr Shahid Khan of Imperial College London, recently commented (Jan 2012) on the current situation re liver transplantation for CC : “Liver transplantation for CC has been performed but resulted in poor outcomes with early cancer recurrence and high death rates and so is not performed by most centres worldwide. However, transplantation may become an option again in the future, as we have seen data from ...

Read More

10 mins on BBC Radio Leeds (nearly!)

On Monday, 6th February, Day 6 of Cholangiocarcinoma Awareness Month, CC got almost 10 minutes air time on BBC Radio Leeds! Malcolm Robinson and Helen Morement were interviewed by Wes Butters on his morning programme that promises to "get West Yorkshire talking".  Malcolm described his personal experience of CC, and both were able to mention AMMF and its work.  A great awareness raising opportunity - m...

Read More

New! Donate by text message

At AMMF we are doing all we can to raise awareness and to encourage and support research into cholangiocarcinoma.  But we can’t do it without your help.  There are several ways to donate – on line via AMMF’s Justgiving page, or by cheque, but now you can also donate by text message.  Using JustTextGiving couldn’t be simpler. Your message must include the code AMMF 12 followed by the amount you...

Read More

Marcella raises awareness!

AMMF supporter, Marcella Smith, who lost her husband Stewart to CC just last September, has vowed to do all she can to help raise the awareness of this ruthless disease. Two days in to Cholangiocarcinoma Awareness Month, 2nd February,  she did just that - listen to her moving interview on Annie Othen's programme on BBC Radio Coventry and Warwickshire. To hear the interview, click here - Marcella's inter...

Read More

AMMF, CC and the Yorkshire Post!

Awareness Month got off to an excellent start with several press and radio interviews lined up, including one for the Daily Express. AMMF supporter and campaigner, Malcolm Robinson, was interviewed by the Yorkshire Post, and it was a real boost to the campaign to have the article appear in that paper on 1st February.   Many thanks to Malcolm for sharing his inspirational story. To read the story, cl...

Read More

CC Awareness Month Press Release

AMMF has now circulated a press release throughout the UK, announcing that this coming February is Cholangiocarcinoma Awareness Month, and launching the charity's new CChallenge for 2012.  To download the press release, click here AMMF press release_Jan12

Read More

AMMF’s Latest Newsletter

To download a copy of AMMF's latest newsletter, click here          

Read More

RCF Online Survey Request

Online survey: Improving outcomes for patients with advanced cancer The Rarer Cancers Foundation has asked AMMF to help with an on line survey – they want to do all they can to support the NHS in ensuring that people with rarer and less common cancers have the best possible care and treatment. To do this, they need to know more about people’s experiences and what they value when they have advanced f...

Read More

AMMF joins Cancer52

AMMF is delighted to have become a member of Cancer52, the organization providing a “common voice for the less common cancers”. Cancer52 is so named because 52% of cancer deaths in the UK are from the less common cancers (although in 2010 this proportion increased to 53%). Despite this figure, the less common cancers remain severely under represented and under funded across all areas, including polic...

Read More

Introducing AMMF’s Research Fellow

AMMF was delighted to report a few months ago that it had been agreed with Imperial College that the charity would fund a Research Fellowship for a year. Dr Abigail Zabron has now begun her research work and has written to AMMF introducing herself, describing what led her to embark on cholangiocarcinoma research, and outlining what she hopes to achieve.  I’m sure we all wish her the very best with her r...

Read More

AMMF meets Imperial College Research Team

AMMF’s Imperial College Meeting Summary On Thursday 28 July, a gloriously sunny day in London, AMMF representatives, Helen Morement, Noel Corrigan and Dr Ruth Corrigan, met with the Imperial College cholangiocarcinoma research team to find out what is currently happening in the world of cc research. Imperial’s cc research team were out in force - Professor Simon Taylor-Robinson, Dr Shahid Khan, Dr A...

Read More

Toddler Triathlon for AMMF!

On Thursday 14th July, Joseph’s Nursery in York held a sponsored Toddler Triathlon in aid of AMMF.  Could this be a first?  It certainly is as far as fundraising events for AMMF are concerned!   The sun shone as the children tramped, triked and hunted for treasure, cheered on by their parents.  These activities were followed by a well deserved picnic, and all the children received a medal and a cert...

Read More

AMMF to Fund Research Fellow

We are delighted that it has now been confirmed with Imperial College that AMMF will be making a grant of £42,000 to fund a Research Fellow for a year from October 2011, who will be working on cholangiocarcinoma proteomics and genetics research. More details on this will be coming soon, but in the meantime, huge thanks to everyone who has worked so hard raising funds in a variety of ways, and especiall...

Read More

Genetic Risk Factor Study

For details on research recently carried out at Imperial College on genetic risk factors in the development of cholangiocarcinoma, which was part funded by AMMF, please click to see AMMF's Research Updates page: AMMF's Research Updates page

Read More