Ammf News

ESMO Guidelines – SIRT an option for iCC

The new ESMO Biliary Cancer Guidelines indicate Selective Internal Radiation Therapy (SIRT) with Y-90 Microspheres as an option for post-chemotherapy treatment of intrahepatic cholangiocarcinoma (iCCA). The new ESMO1 guidelines on biliary cancers2 were published in September 2016 as a supplement to the Annals of Oncology. Their lead author, Professor Juan Valle of the Christie NHS Foundation Trust, Univers...

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PCI Biotech CCA study selected for presentation

Oslo: October 17, 2016 – PCI Biotech, the cancer focused biopharmaceutical company, announced that an abstract with results from their Phase I cholangiocarcinoma study had been selected for oral presentation as late-breaking news at this week's United European Gastroenterology (UEG) conference in Vienna, Austria. The results will be presented by Dr. Alexander Dechêne, University Hospital Essen, Germany,...

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Ambling around the world!

Thank you to everyone who took part in the first ever ‘Amble for AMMF’ on Sunday 4th September, 2016. This event caught the imagination of hundreds of people who joined in and ambled in many parts of the world - across the UK, in Ireland, the USA, France and even Eastern Siberia! Through the generosity of AMMF's Amblers, an astounding £10,000 was raised which will be an enormous help with the ch...

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Edinburgh study identifies CC trigger …

AMMF is delighted to see that the positive research findings of work the charity has been co-funding at the University of Edinburgh have been published in the Proceedings of the National Academy of Sciences. The Edinburgh team have identified a molecule that is a key driver in the development of bile duct cancer (cholangiocarcinoma). They have shown that this molecule - Notch 3 - triggers a pathway o...

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Amble for AMMF launches!

AMMF is delighted to announce the launch of its very first annual fundraising event – Amble for AMMF. On the first Sunday in September each year, we hope to bring together the AMMF family and supporters to raise funds and awareness for AMMF and cholangiocarcinoma. Our first Amble will take place on Sunday, 4th September 2016, and we invite all AMMF's supporters to join with us in this event. How it wor...

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Updates on transplant, trials and more …

AMMF’s Helen Morement reports on the NCRI Hepatobiliary Clinical Trials group meeting, June 2016 In my capacity as a patient representative and advocate, I attend the regular NCRI Hepatobiliary Clinical Trials group meetings, where I get the opportunity to put forward questions and seek information on behalf of cholangiocarcinoma patients.   The members of this group are concerned wit...

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Sweet drinks and biliary tract cancer; is there a link?

A new study from Sweden has been much in the news lately, linking the consumption of sugary drinks, juices as well as sodas, to biliary tract cancer (bile duct cancer/cholangiocarcinoma) and gallbladder cancer: "People who consume at least two juice drinks a day had more than twice the risk of developing gallbladder tumours and a 79 per cent higher risk of cancer in the liver bile ducts, according to a new...

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AMMF joins European Cancer Patient Coalition

AMMF is pleased to have joined the  European Cancer Patient Coalition (ECPC) as a full member. ECPC is the largest European cancer patients' umbrella organisation, representing 370+ organisations in dozens of countries.  One of the coalition's main aims is to ensure no cancer is forgotten. Providing a unified voice for cancer patients across Europe, ECPC is working towards equality for all cance...

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AMMF’s “inspirational meeting”

AMMF's Information Day at Imperial College London, 10 May 2016 Malcolm Robinson, CC survivor and longstanding AMMF supporter, summed up the thoughts of many of those who attended AMMF's Information Day on 10 May at Imperial College London: “A wonderful opportunity to find out just how all the AMMF fundraising efforts of our supporters is invested in medical experts of the highest quality and dedicatio...

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The Two Toms in Thailand

Two Imperial College London 'medical students to be', Tom Hughes and Tom O'Connor, have taken on an elective period of research and study into cholangiocarcinoma in Kohn Kaen, Thailand, and are sharing their experiences with AMMF.             The Two Toms blogged especially for the inaugural World Cholangiocarcinoma Day on 17 February 2016 - to read...

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AMMF in Thailand 2016

The incidence of cholangiocarcinoma is increasing, not only in the UK but throughout the world.  It is certainly a global problem, but Thailand has the world's highest incidence of this disease, with the Isaan Province in the north east of the country being the epicentre. Following the 3-day international cholangiocarcinoma workshop in Khon Kaen in north east Thailand in 2014, which AMMF attended, and w...

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AMMF launches Discussion Forum

After many requests, AMMF has now launched a Discussion Forum on its new, revamped website. The Discussion Forum is for everyone whose life has been touched in any way by cholangiocarcinoma (bile duct cancer, biliary tract cancer, gall bladder cancer) providing an area where patients, family members, carers, supporters, fundraisers and those who have been bereaved, can talk about all things related t...

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AMMF’s Twibbon is here …

The AMMF Twibbon is now available for fundraisers and supporters to add to the corner of profile images on Facebook pages and Twitter accounts. If you would like to raise awareness and show your support for AMMF with the Twibbon, just click the link and follow the simple instructions. For your AMMF Twibbon, click here

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CC Awareness Month 2016 Guest Posts

Thank you to each courageous person who contributed a Guest Post for AMMF's Facebook page during Cholangiocarcinoma Awareness Month, February 2016. We know that each of these posts is a personal story, with every word written from the heart - which is exactly what makes them so very special. This year, the number of likes, shares and supportive comments each Guest Post received was beyond anything we ...

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“Progress with targeted agents in cholangiocarcinoma – reality or myth?”

At the ESMO1 17th World Congress on Gastrointestinal Cancer held in Barcelona in July 2015, Professor Juan Valle, consultant and medical oncologist at The Christie, Manchester UK, and one of AMMF’s medical advisors, spoke about the progress being made in the understanding of cholangiocarcinoma, the studies being carried out to find target agents, and also genomic profiling, in the search for better and mo...

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GWAS Cholangiocarcinoma Study

The Genome-wide Association Study (GWAS) for Cholangiocarcinoma Professor Simon Taylor-Robinson and Dr. Shahid Khan at Imperial College London are collaborating on the GWAS project with the Mayo clinic in the USA1, as one of their ongoing studies in cholangiocarcinoma. If you2 would be interested in donating blood and urine samples for analysis to the Imperial Hepatology & Gastroenterology BioBank...

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The ABC-03 trial

As a result of the landmark ABC-02 study, the Cisplatin and Gemcitabine chemotherapy combination1 is recognised as the standard first-line treatment for those with inoperable biliary tract cancer (cholangiocarcinoma).  However, the search goes on for improvements to this regime. In the ABC-03 study, Cediranib (an anti angiogenic drug1) was added to the Gemcitabine / Cisplatin combination. Unfortu...

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Interim Report from AMMF’s Research Fellow

AMMF has just received an interim report from the Institute of Hepatology in London on the cholangiocarcinoma research work being carried out there by our Research Fellow, Dr Gemma Choy. This work has involved investigating whether the MAPK signalling pathway allows intrahepatic cholangiocarcinoma cell proliferation.  We are very pleased to learn that the project is progressing well with results to date...

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New Cancer Strategy for England published

The report, “Achieving world-class cancer outcomes: a strategy for England 2015-2020”, has just been published and has been widely welcomed by many in the cancer communities, including Cancer52. In January 2015, The Independent Cancer Taskforce1 was set up to develop a five-year strategy for cancer services.  The report is the result of responses to a Call for Evidence,  outputs from 30 workshops, ...

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AMMF’s Summer Photo Comp is back!

“Give us your best shot #2” Throughout summer 2014 we loved seeing the imaginative photos that were submitted for AMMF's first photo competition. So "Give us you best shot" is back for 2015 - running from July to the end of September. We'd love to see your photos from wherever you happen to be spending your holiday, or just having a summer's day out - a picnic, walking, up a mountain, on the beach,...

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Cholangiocarcinoma mortality higher than incidence?

The survival rate for cholangiocarcinoma is recognised to be extremely low, but how can mortality be higher than incidence? The statistics in the recently published NCIN1/Cancer522 Rare and Less Common Cancers report show not only that the incidence of cholangiocarcinoma is increasing year on year, but also that the mortality figures for the years 2012 and 2013 are higher than the incidence. This is also r...

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AMMF and the Rare Cancer Report

by Helen Morement A year ago, I was invited to be part of the advisory board for a new collaborative project being undertaken by Public Health England's National Cancer Intelligence Network (NCIN1) and Cancer522. This aim of this project was to produce, for the first time, a list of as many of the rare and less common cancers as possible together with their correct ICD-10 codings3 and their incidence and m...

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MidKent students support AMMF

In the second year of their Business Studies programme, students at MidKent College have to plan and hold 'real' fundraising charity events as part of their course.  We're delighted to report that this year's students have chosen AMMF as the charity to benefit from their activities. AMMF's Helen Morement visited the college, along with AMMF supporter Phil Pointon, to meet Business Studies lecturer, Daniel...

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AMMF’s latest newsletter …

Our latest newsletter is now in circulation. We share AMMF’s news daily on our website and via social media, especially through our active Facebook page, but producing a newsletter gives us a chance to gather together and review the most outstanding events of the recent past. It also gives us an opportunity to especially remember those we have recently lost cholangiocarcinoma and to thank their fami...

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CC Awareness Month 2015 Guest Posts

Thank you to each person who took their courage in both hands and contributed a Guest Post for AMMF’s Facebook page during Cholangiocarcinoma Awareness Month 2015. What incredibly moving stories were shared by those who have lost precious people to cholangiocarcinoma, from those currently undergoing treatment and from all too few “survivors”. It was heartwarming to see the kind and supportive co...

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