CC: An Insidious Cancer

Dr Abigail Zabron, AMMF’s Research Fellow at Imperial College London, has produced a paper entitled, “The challenge of cholangiocarcinoma: dissecting the molecular mechanisms of an insidious cancer” which has just been published online in, "Disease Models and Mechanisms". The aim of this paper is to provide an overview of the various areas of basic CC research that has been covered in recent years...

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The Indigestion Question …

During Cholangiocarcinoma Awareness Month, CC Symptoms were covered on Day 5 of our Facebook Facctoid feature: "CC’s symptoms can be vague … Because cholangiocarcinoma (bile duct cancer) arises from the bile ducts, either within the liver or after the main bile duct leaves the liver and links the liver to the duodenum, the commonest symptoms are due to blocking of the flow of bile in the bile ducts -...

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Lord Saatchi’s Cancer Initiative/Updated 21.05.13

'Cancer doctors need freedom to innovate' Lord Maurice Saatchi, whose wife Josephine Hart died from peritoneal cancer in 2011, is calling for the law relating to cancer treatment to be changed. He describes the current law as a 'barrier to progress in curing cancer' and says doctors are deterred from trying new forms of treatment in case they are sued - they often know that standard procedures are not a...

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Facctoids – February 2013

What are Facctoids? During February’s Cholangiocarcinoma Awareness Month there were daily feature posts on AMMF's Facebook page - Guest Post of the Day, Fundraiser Pic of the Day, and ... Facctoids. What are Facctoids?  They're snippets of information on every aspect of cholangiocarcinoma, all the facts and figures, from symptoms and methods of diagnosis to treatments and current areas of research. ...

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Your Inspirational Guest Posts

During February’s Cholangiocarcinoma Awareness Month, we had a fantastic response to our Facebook Guest Post of the Day feature!  And what incredible posts they were - telling of love, courage and support, of so many people lost to this ruthless disease, and of the appalling lack of knowledge there is of CC. Undoubtedly, many tears were shed over these posts - both in the writing and the reading - fro...

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Holby City patient has CC!

On last night's episode of BBC1's Holby City (5th March) a patient was actually diagnosed with cholangiocarcinoma! OK, so the situation was somewhat improbable - the symptoms, path to diagnosis and MDT meeting were no doubt far removed from most people's experiences ... but the words bile duct cancer and cholangiocarcinoma were spoken (albeit just once each!) on national television. Many comments comi...

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Dr Zabron’s Mayo Report

AMMF's Research Fellow, Dr Abigail Zabron, visits the Mayo Clinic, USA Dr Abigail Zabron, the Imperial College London Research Fellow funded by AMMF*, was awarded the Dame Shelia Sherlock travelling fellowship in Hepatology 2012. This enabled her to spend a month at the Mayo Clinic, Minnesota, USA, last autumn. Dr Zabron's hosts were Professor Greg Gores and Dr Lewis Roberts, both clinician-scientis...

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Transplantation – where are we?

Liver transplantation for CC in the UK - where are we? The Mayo Clinic in the US has for some time shown very positive results with their programme of liver transplantation for cholangiocarcinoma, albeit with very carefully selected patients who are subjected to a stringent pre-transplant treatment protocol. (Five year survivals of over 70% of these patients has now been reported.) In the autumn of 2011...

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“Our CC Family” Launches Today

There is a new section on AMMF's website, Our CC Family ... This is a family photo pinboard for everyone to use.  If your life has been touched by CC in any way - if you’re a patient, carer, friend, family member, supporter, fundraiser – then it’s for you. We want to show that it’s real people who are affected by this disease – and give them a chance to say something about it … (To g...

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CC Awareness Month 2013 Press Release

At the start of this year's Cholangiocarcinoma Awareness Month, AMMF is circulating a press release drawing attention to the recently published Guidelines for the Diagnosis and Treatment of Cholangiocarcinoma in the UK, Drawn up by a group of leading GI specialists, and developed with the support of AMMF and The British Liver Trust, these guidelines have been comprehensively updated for the first time i...

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