Dear Hettie,
Thank you for posting to AMMF’s discussion forum, although we are all sorry to learn that your Father has been diagnosed with cholangiocarcinoma.
Please note it is not appropriate for AMMF to give medical advice or recommendations, and all details provided are for information purposes only.
Unless already under the care of a specialist experienced with cholangiocarcinoma, we do suggest that patients who have received a diagnosis of cholangiocarcinoma (bile duct cancer), should ask to be referred for a second opinion with a named consultant of their choice, either to ensure their diagnosis is correct and/or for reassurance that the treatments recommended are the best options for them.
Details on how to go about this can be found on AMMF’s website: https://ammf.org.uk/referral-information/
And information on specialist centres in the UK can be found here: https://ammf.org.uk/specialist-treatment-centres/
Regarding the various questions you have about your father’s treatment– There is more information on AMMF’s website regarding treatment options in the UK https://ammf.org.uk/treatment-options-2/ , including biopsies and surgery.
I hope some of this is helpful for you, and that others will come in and share their experiences with you. And please post again if there’s anything else you think we can help with, and to let us know how your father is getting on.
With kindest regards
Michaela
Please note it is not appropriate for AMMF to give medical advice or recommendations, and all details provided are for information purposes only.