Locally advanced distal CC encasing coeliac plexus

Discussion Forum Discussion Forum Welcome Locally advanced distal CC encasing coeliac plexus

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  • #16355

    Uk33
    Participant

    Hi

    My relative in his 60s was diagnosed with a distal CC last year. Had a failed whipple’s due to the tumor encasing blood vessels Abdo pain has been a significant issue. Had few cycles of chemo gem/cis. Followed by radiotherapy. The radiotherapy fatigue seems particularly bad now a few weeks later. Can anyone advice about radiotherapy fatigue? Can it result in patients becoming totally wiped out? Bed ridden? Any particular treatments that work well for these distal tumors impinging on the neurovascular bundle?!?! Any advice/tips much appreciated! Thanks in advance.

    #16357

    Michaela
    Moderator

    Dear UK33,

    Welcome to the AMMF forum, although we are very sorry to learn that your relative has been diagnosed with cholangiocarcinoma.

    We are sure other forum users will come in and share their experiences with you.

    You may also be interested to know, that AMMF has a very active Facebook support group you might like to visit – a private space for all whose lives have been touched by cholangiocarcinoma in any way to share their concerns, information, knowledge and friendship with others.

    ‘Cholangiocarcinoma Support (UK & Europe)’ is especially for those in the UK and Europe, but open to all across the globe.

    If you would like to join the group – just follow the link and then click the Join Group button.

    http://www.facebook.com/groups/cholangiocarcinomasupportukandeurope/

    With kindest regards

    Michaela

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