AMMF News

Sharon talks to Wessex FM

Sharon Solomon has courageously used her personal experience of cholangiocarcinoma to raise awareness in the Dorset area. In an interview with Wessex FM, Sharon described her own journey through her diagnosis of CC, her surgery, and now as she waits for the results of further tests. Many thanks go to Sharon for this massive boost to CC awareness and the work of AMMF. The interview was broadcast th...

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Helen says, “I’m lucky” …

Helen Tanner of Barnstaple, had never heard of cholangiocarcinoma until she was diagnosed with it in 2010. Initially, she didn't feel particularly ill; the only indication that something might be awry were a "couple of strange symptoms which didn't feel quite right."  As we know, CC can be very difficult to detect and is often diagnosed too late for surgery, which is currently the only treatment availab...

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CC between Robbie and Mick …

Day 15 of Cholangiocarcinoma Awareness Month, and CC gets another radio airing - this time sandwiched between Robbie Williams and the Rolling Stones on BBC Essex! AMMF's Helen Morement was interviewed by Etholle George on the Dave Monk morning programme - another great chance to raise the awareness of CC,  AMMF and its work, and to talk about the CChallenge. To hear the interview, click here,  and g...

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Nicola’s Tribute

During February, Cholangiocarcinoma Awareness Month, we have been having a Guest Post each day on AMMF's Facebook page.  Today's was by Nicola Orthmani and she described it as, "A loving daughter's CC journey from right by her Father's side from beginning to a devastating end…" To read this very moving tribute to her father, Charlie Allum, and the description of the journey CC took them on, please cli...

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Transplantation – current thoughts

Dr Shahid Khan of Imperial College London, recently commented (Jan 2012) on the current situation re liver transplantation for CC : “Liver transplantation for CC has been performed but resulted in poor outcomes with early cancer recurrence and high death rates and so is not performed by most centres worldwide. However, transplantation may become an option again in the future, as we have seen data from ...

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10 mins on BBC Radio Leeds (nearly!)

On Monday, 6th February, Day 6 of Cholangiocarcinoma Awareness Month, CC got almost 10 minutes air time on BBC Radio Leeds! Malcolm Robinson and Helen Morement were interviewed by Wes Butters on his morning programme that promises to "get West Yorkshire talking".  Malcolm described his personal experience of CC, and both were able to mention AMMF and its work.  A great awareness raising opportunity - m...

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New! Donate by text message

At AMMF we are doing all we can to raise awareness and to encourage and support research into cholangiocarcinoma.  But we can’t do it without your help.  There are several ways to donate – on line via AMMF’s Justgiving page, or by cheque, but now you can also donate by text message.  Using JustTextGiving couldn’t be simpler. Your message must include the code AMMF 12 followed by the amount you...

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Marcella raises awareness!

AMMF supporter, Marcella Smith, who lost her husband Stewart to CC just last September, has vowed to do all she can to help raise the awareness of this ruthless disease. Two days in to Cholangiocarcinoma Awareness Month, 2nd February,  she did just that - listen to her moving interview on Annie Othen's programme on BBC Radio Coventry and Warwickshire. To hear the interview, click here - Marcella's inter...

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AMMF, CC and the Yorkshire Post!

Awareness Month got off to an excellent start with several press and radio interviews lined up, including one for the Daily Express. AMMF supporter and campaigner, Malcolm Robinson, was interviewed by the Yorkshire Post, and it was a real boost to the campaign to have the article appear in that paper on 1st February.   Many thanks to Malcolm for sharing his inspirational story. To read the story, cl...

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CC Awareness Month Press Release

AMMF has now circulated a press release throughout the UK, announcing that this coming February is Cholangiocarcinoma Awareness Month, and launching the charity's new CChallenge for 2012.  To download the press release, click here AMMF press release_Jan12

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AMMF’s Latest Newsletter

To download a copy of AMMF's latest newsletter, click here          

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RCF Online Survey Request

Online survey: Improving outcomes for patients with advanced cancer The Rarer Cancers Foundation has asked AMMF to help with an on line survey – they want to do all they can to support the NHS in ensuring that people with rarer and less common cancers have the best possible care and treatment. To do this, they need to know more about people’s experiences and what they value when they have advanced f...

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AMMF joins Cancer52

AMMF is delighted to have become a member of Cancer52, the organization providing a “common voice for the less common cancers”. Cancer52 is so named because 52% of cancer deaths in the UK are from the less common cancers (although in 2010 this proportion increased to 53%). Despite this figure, the less common cancers remain severely under represented and under funded across all areas, including polic...

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Introducing AMMF’s Research Fellow

AMMF was delighted to report a few months ago that it had been agreed with Imperial College that the charity would fund a Research Fellowship for a year. Dr Abigail Zabron has now begun her research work and has written to AMMF introducing herself, describing what led her to embark on cholangiocarcinoma research, and outlining what she hopes to achieve.  I’m sure we all wish her the very best with her r...

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AMMF meets Imperial College Research Team

AMMF’s Imperial College Meeting Summary On Thursday 28 July, a gloriously sunny day in London, AMMF representatives, Helen Morement, Noel Corrigan and Dr Ruth Corrigan, met with the Imperial College cholangiocarcinoma research team to find out what is currently happening in the world of cc research. Imperial’s cc research team were out in force - Professor Simon Taylor-Robinson, Dr Shahid Khan, Dr A...

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Toddler Triathlon for AMMF!

On Thursday 14th July, Joseph’s Nursery in York held a sponsored Toddler Triathlon in aid of AMMF.  Could this be a first?  It certainly is as far as fundraising events for AMMF are concerned!   The sun shone as the children tramped, triked and hunted for treasure, cheered on by their parents.  These activities were followed by a well deserved picnic, and all the children received a medal and a cert...

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AMMF to Fund Research Fellow

We are delighted that it has now been confirmed with Imperial College that AMMF will be making a grant of £42,000 to fund a Research Fellow for a year from October 2011, who will be working on cholangiocarcinoma proteomics and genetics research. More details on this will be coming soon, but in the meantime, huge thanks to everyone who has worked so hard raising funds in a variety of ways, and especiall...

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Genetic Risk Factor Study

For details on research recently carried out at Imperial College on genetic risk factors in the development of cholangiocarcinoma, which was part funded by AMMF, please click to see AMMF's Research Updates page: AMMF's Research Updates page

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AMMF at the London Marathon

Of the 35,000 runners who took part in the London Marathon on 17th April, none had more good wishes with them than AMMF’s own Fab Four - Trevor Sibley, Francis Chua, Debbie Dowsett and Maria Joy.   It was certainly a glorious day in the capital and, although the unaccustomed sun and heat made the going difficult at times, all our runners crossed the finish line safely - their official times were:   ...

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Malcolm takes AMMF to New Heights!

Malcolm Robinson has climbed Pen-y-Ghent in the Yorkshire Dales several times in the past but, following a diagnosis of cholangiocarcinoma in 2010, major surgery and chemotherapy, it was something he doubted he would do again. So undertaking this climb again on Sunday 10th April, accompanied by family and friends, was certainly an achievement - and a double celebration - Malcolm celebrating his 'all c...

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GP Practice Adopts AMMF

AMMF is delighted to report that the Waterside Practice, Ilfracombe, North Devon, has adopted AMMF as their charity to support for the next six months. They certainly have a very good reason for doing this - Helen Tanner, their Practice Manager, was diagnosed with cholangiocarcinoma in Oct 2010 and following surgery has just returned to work part time. AMMF sends a huge thank you to everyone at th...

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AMMF Receives Grant

AMMF is delighted to have been awarded a grant of £1000 from St James’s Foundation, the charitable arm of St James's Place Wealth Management, to help with the charity’s work.  Huge thanks go to the Foundation and to Samanatha Mawdsley for this wonderful support!

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Rarer Cancers Survey Report

The Government's new cancer strategy, "Improving Outcomes: a Strategy for Cancer", has set an objective of saving an additional 5,000 lives by 2014/15.  Taking into account the incidence and mortality associated with rarer cancers, it would be reasonable to assume that 2,500 of these lives would be for rarer cancers. Last year, the Department of Health asked The Rarer Cancers Foundation to undertake...

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HSBC Leeds Supports AMMF

We are delighted to report that the Service Quality Team at HSBC, Leeds, will be supporting AMMF throughout 2011!   This is in memory of their colleague, Carol Melvin, who will be known to many in our cc family. What a wonderful tribute to an inspirational lady who did so much to raise the awareness of cholangiocarcinoma. Looking forward to reports on their fundraising exploits during 2011 ...

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AMMF Newsletter Winter 2010/11

To download a pdf copy of the latest AMMF newsletter, click here

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