Biliary tract cancer patient and caregiver experiences survey 2025 report
AMMF has published a new report which summarises the findings from an online survey conducted by the charity in 2025.
To help improve our understanding of the experiences of people diagnosed with biliary tract cancers (BTCs) including cholangiocarcinoma (bile duct cancer), gallbladder cancer, and ampullary cancer, as well as their partners/family/caregivers, AMMF conducted an online survey in summer 2025.
The survey questions covered topics including symptoms, employment, experiences of care/treatment, and emotional wellbeing. A total of 70 people participated, including 34 people diagnosed with a BTC and 36 partners/family members/caregivers.
The results of the survey have been summarised in a report, which is now available:
AMMF is extremely grateful to everyone who participated in the online survey. The findings and anonymised comments are being used by the charity within evidence submissions to the National Institute for Health & Care Excellence (NICE) and the Scottish Medicines Consortium (SMC) to advocate for access to innovative new treatments.
