AMMF joins European Reference Network (Rare-Liver)
AMMF is now a representative and advocate for cholangiocarcinoma patients within ERN-RARE-LIVER, the rare hepatic disease section of the European Research Networks.
ERN RARE-LIVER is looking to connect expert centres across Europe, including the UK, to improve access to diagnosis, treatment and high quality care for patients with rare liver diseases.
To find out more about the work of the ERNs click here:
And to see the list of the first 24 ERNs were launched in 2017, involving more than 900 highly-specialised healthcare units from over 300 hospitals in 26 Member States, click here
The ERN-RARE-LIVER factsheet:
Patient representation within the ERN (European Research Networks) is being run by EURORDIS, ‘The Voice of Rare Disease Patients in Europe’. To find out more about EURORDIS, click here