AMMF at the Cancer52 Parliamentary Event

“The hidden majority – improving outcomes for people with rare and less common cancers …”

This was the title of the Cancer52 event, hosted by John Baron MP, Chairman of the All Party Parliamentary Group on Cancer, held in the House of Commons on 10th December 2014.

Why “The hidden majority”?  Simply, this describes the shocking fact that 54% of cancer deaths in the UK are attributable to the rarer and less common cancers. And this hidden majority is disadvantaged in many ways – with delayed diagnosis, poorer NHS experience overall (as highlighted in the recent National Cancer Patient Experience Survey 2012-2013), and low levels of investment in research.

AMMF, as a member of Cancer52, took an active part in this event to highlight the neglected “hidden majority” and ask that MPs from all parties work together towards improving outcomes for people with these diseases.

A briefing document was prepared which outlined the problems and the improvements that are so badly needed, and this was circulated to all MPs attending.

To read the briefing document, click here

In company with many supporters and officials from other rarer cancer organisations, AMMF was delighted to have cholangiocarcinoma patients, family members and medics  with us and, together, we certainly put forward the case for more recognition for cholangiocarcinoma.

To see more photographs from this event, click here

Cancer52 is an alliance of 80 organisations representing the rare and less common cancers and works to address the inequalities in representation and funding across all areas, including policy, services and research, and to improve outcomes for patients with these highly challenging diseases.  AMMF is a member of Cancer52.

December 2014