How long ?

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This topic contains 3 replies, has 2 voices, and was last updated by  Julie_ammf 2 weeks, 4 days ago.

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  • #12741

    sanlees
    Participant

    Hi all, I’m new to AMMF.just need some advice please, my brother is 44 with a 4 yr old son he has bile duct cancer diagnosed 2 years ago, he had major surgery to remove a tumour in the bile duct which was also wrapped around his main artery, he did not have chemo after as they were confident they had got it all out, now 18 months later it’s back in the same place. They also removed half his liver in last operation,this time they saying they can’t operate and it’s terminal , he refuses chemo as it won’t cure him , he is trying his own alternative therapies but if left this tumour will block the bile duct and the jaundice, itching and sickness will return. We asked about immunotherapy but it’s not been trialled yet. My heart is breaking at the thought of losing my little brother and his son his Daddy, how long will he have left I’m scared to ask. It’s so rare for someone his age , does anyone know of other men of this age with this horrible disease?any advice I would be grateful for. Thankyou

    #12751

    Julie_ammf
    Moderator

    Welcome to the AMMF Forum Sanlees and thank you for sharing your story.

    All of us at AMMF are very sorry to read about your brothers diagnosis and can empathise with how you must be feeling at this very difficult time.

    I am assuming that you are the person we contacted this week, by email, with the various links to our website that may be useful regarding treatment http://ammf.org.uk/treatment-options-2/ and also the section on clinical trials http://ammf.org.uk/clinical-trials/

    I am sure other forum users will come in to comment and share their vast experiences with you and may I take this opportunity to send our warmest wishes to you and your family.

    Kind regards
    Julie

    Please note it is not appropriate for AMMF to give specific medical advice or recommendations, but we do have a wealth of experience and information which we are always willing to share, whenever possible.

    #12768

    sanlees
    Participant

    AMMF.   Thankyou for your kind reply . I really do need to hear from people in the same situation as my brother . Without chemo I don’t know what will happen and how quickly, he’s already suffering with daily sickness and tiredness. Any advice is appreciated.
    Thankyou
    Sanlees x

    #12772

    Julie_ammf
    Moderator

    Hello again Sanlees

    We have a section on our website that lists other organisations that could also give you support. They are UK and web-based organisations who help with resources for patients, families and caregivers that may be helpful in your situation http://ammf.org.uk/helpful-links/

    Julie

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