Cholangiocarcinoma mortality higher than incidence?

The survival rate for cholangiocarcinoma is recognised to be extremely low, but how can mortality be higher than incidence? The statistics in the recently published NCIN1/Cancer522 Rare and Less Common Cancers report show not only that the incidence of cholangiocarcinoma is increasing year on year, but also that the mortality figures for the years 2012 and 2013 are higher than the incidence. This is also r...

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AMMF and the Rare Cancer Report

by Helen Morement A year ago, I was invited to be part of the advisory board for a new collaborative project being undertaken by Public Health England's National Cancer Intelligence Network (NCIN1) and Cancer522. This aim of this project was to produce, for the first time, a list of as many of the rare and less common cancers as possible together with their correct ICD-10 codings3 and their incidence and m...

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AMMF at the London Marathon 2015

What a fantastic day! The biggest London Marathon in history, and amongst the many thousands who crossed the finish line in The Mall, none were more important or had more good wishes going with them than AMMF’s three runners – Rachel, Gary and Gwilym. As 2015 was our Silver Bond year, we had one guaranteed place to offer. This went up for auction and the successful bidder was Rachel Munns, who wanted...

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MidKent students support AMMF

In the second year of their Business Studies programme, students at MidKent College have to plan and hold 'real' fundraising charity events as part of their course.  We're delighted to report that this year's students have chosen AMMF as the charity to benefit from their activities. AMMF's Helen Morement visited the college, along with AMMF supporter Phil Pointon, to meet Business Studies lecturer, Da...

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AMMF’s latest newsletter …

Our latest newsletter is now in circulation. We share AMMF’s news daily on our website and via social media, especially through our active Facebook page, but producing a newsletter gives us a chance to gather together and review the most outstanding events of the recent past. It also gives us an opportunity to especially remember those we have recently lost cholangiocarcinoma and to thank their ...

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CC Awareness Month 2015 Guest Posts

Thank you to each person who took their courage in both hands and contributed a Guest Post for AMMF’s Facebook page during Cholangiocarcinoma Awareness Month 2015. What incredibly moving stories were shared by those who have lost precious people to cholangiocarcinoma, from those currently undergoing treatment and from all too few “survivors”. It was heartwarming to see the kind and supportive co...

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AMMF Awards Research Fellowship

AMMF awards a Research Fellowship to Dr Pui Man (Gemma) Choy AMMF has agreed to fund a Research Fellowship at the Institute of Hepatology London for a period of two years, beginning March 2015. Grants totalling £82,060 will be made over this two year period to enable Dr Pui Man (Gemma) Choy to continue research on the molecular mechanisms of cholangiocarcinoma development that AMMF has already been suppor...

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BLT’s ‘Your Liver’ Campaign

AMMF is pleased to support the 'Your Liver' campaign, a British Liver Trust campaign in partnership with MediaPlanet UK. Launched on 13th March, with a supplement in The Independent and a dedicated website, the aim of the campaign is to highlight liver diseases and is a good opportunity to raise the awareness of cholangiocarcinoma, one of the least known and poorly understood of the liver diseases. ...

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AMMF at Imperial College 11.02.15

This report on the research presentations and Q&A session at AMMF's event at Imperial College London on 11 February, has been written by Rebecca Morement, who is currently working as an intern with the charity.   A philosophy graduate of the University of York, Rebecca has a keen interest in bioethics, and is gaining a real insight and understanding of the problems associated with cholangio...

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CCF Conference, 5 & 6 February, Salt Lake City, Utah

As part of Cholangiocarcinoma Awareness Month, AMMF's Helen Morement, together with Dr John Bridgewater and Professor Juan Valle from the UK, joined with scientists and clinicians from across the US at The Cholangiocarcinoma Foundation's conference in Salt Lake City, to hear of the progress being made on both sides of the Atlantic towards our shared goal - a cure for cholangiocarcinoma. Amongst the e...

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