CC Meeting Report

NCRI* Hepatobiliary subgroup meeting 1st March and subsequent meeting with Professor John Primrose, 7th March 2012. AMMF has been asked to become a member of the NCRI Hepatobiliary subgroup in order to represent cholangiocarcinoma patients. Amongst those attending the meeting on 1st March were Dr John Bridgewater, Professor John Primrose, Dr Hassan Malik, Dr Harpreet Wasan, Dr Juan Valle, Professor Dan Pal...

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February’s FB Guest Posts

During February's Cholangiocarcinoma Awareness Month, we had a Guest Post of the Day on AMMF's Facebook page, and these posts provided some incredible stories of love, courage and support, of so many people lost to this ruthless disease, and of the appalling lack of knowledge there is of cholangiocarcinoma. We decided these posts shouldn't just disappear into cyberspace, so they have been gathered togeth...

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Cup Cake CChallenge!

Despite being Practice Manager at a busy GP practice in Devon, Helen Tanner of Barnstaple had never heard of cholangiocarcinoma until she was diagnosed with it in 2010. Following her recovery from surgery, Helen has been a staunch supporter of AMMF and is doing all she can to raise awareness. Helen's staff at the practice have certainly taken up the cause with her. Their most recent fundraiser was a ...

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Marcella’s CCampaign

Marcella Smith, who lost her husband Stewart to CC just last September, promised herself she would do all she could to raise the awareness of CC and to support AMMF. And she has certainly remained true to her word. Through her influence several fundraising activities have already taken place, and during February’s Awareness Month she was interviewed several times, appearing on BBC Radio Coventry & ...

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Sizzling Sausages!

or The Cooked Breakfast CChallenge Report ... Laura Smith chose to support Awareness Month with a Cooked Breakfast CChallenge,raising funds for AMMF in memory of her uncle, Stewart Smith, who died from CC in September last year. On Friday, 24th February, Laura’s employer, GVA in Birmingham, funded the food and those taking part paid set prices for different breakfast items, full English, sausage s...

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Sharon talks to Wessex FM

Sharon Solomon has courageously used her personal experience of cholangiocarcinoma to raise awareness in the Dorset area. In an interview with Wessex FM, Sharon described her own journey through her diagnosis of CC, her surgery, and now as she waits for the results of further tests. Many thanks go to Sharon for this massive boost to CC awareness and the work of AMMF. The interview was broadcast th...

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Helen says, “I’m lucky” …

Helen Tanner of Barnstaple, had never heard of cholangiocarcinoma until she was diagnosed with it in 2010. Initially, she didn't feel particularly ill; the only indication that something might be awry were a "couple of strange symptoms which didn't feel quite right."  As we know, CC can be very difficult to detect and is often diagnosed too late for surgery, which is currently the only treatment availab...

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CC between Robbie and Mick …

Day 15 of Cholangiocarcinoma Awareness Month, and CC gets another radio airing - this time sandwiched between Robbie Williams and the Rolling Stones on BBC Essex! AMMF's Helen Morement was interviewed by Etholle George on the Dave Monk morning programme - another great chance to raise the awareness of CC,  AMMF and its work, and to talk about the CChallenge. To hear the interview, click here,  and g...

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Nicola’s Tribute

During February, Cholangiocarcinoma Awareness Month, we have been having a Guest Post each day on AMMF's Facebook page.  Today's was by Nicola Orthmani and she described it as, "A loving daughter's CC journey from right by her Father's side from beginning to a devastating end…" To read this very moving tribute to her father, Charlie Allum, and the description of the journey CC took them on, please cli...

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Transplantation – current thoughts

Dr Shahid Khan of Imperial College London, recently commented (Jan 2012) on the current situation re liver transplantation for CC : “Liver transplantation for CC has been performed but resulted in poor outcomes with early cancer recurrence and high death rates and so is not performed by most centres worldwide. However, transplantation may become an option again in the future, as we have seen data from ...

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