Cholangiocarcinoma-UK

Following the Cholangiocarcinoma Workshop organised and hosted by Professor Nigel Heaton on Friday 19th January, Dr Shahid Khan introduced the Cholangiocarcinoma-UK group to the audience. The mission statement for Cholangiocarcinoma-UK, a group affiliated to the British Association for the Study of Liver Disease (a BASL Special Interest Group) is: “Cholangiocarcinoma-UK is a multi-disciplinary gro...

Read More

UK contact numbers for medical advice during the holidays

As the long festive break begins, a reminder for all cholangiocarcinoma patients and their carers in the UK – if you have medical concerns during Christmas and New Year holidays, especially if you are undergoing treatment, first try the contact numbers you will have been given by your hospital or CNS (clinical nurse specialist) or if they are not available, for help and advice contact: ENGLAND - N...

Read More

New! The AMMF Cholangiocarcinoma Scholarship

AMMF is delighted to announce The AMMF Cholangiocarcinoma Scholarship, a three-year PhD award.   The first of these three-year AMMF funded PhD studentships is specifically to investigate the role of mutations in bile duct cancer (cholangiocarcinoma). The successful PhD student will be based at The Boulter Lab, located in the MRC Human Genetics Unit at the University of Edinburgh.  The Boulter lab is r...

Read More

AMMF launches ‘Our CC Family – Your Story’

            For the past five years during each February, Cholangiocarcinoma Awareness Month, AMMF has run a daily Guest Post feature on Facebook, which has proved to be extremely important to our supporters. Over those years, the response to this feature has grown enormously and, because of the limitation of the number of days in the month, we know that ...

Read More

Now Published! The MDT: Cholangiocarcinoma Patients’ Observations

“The multidisciplinary team meeting in the UK from the patients’ perspective: comments and observations from cholangiocarcinoma patients and their families”   The thoughts of cholangiocarcinoma patients and their families on what they understood an MDT meeting to be, and their experiences around such meetings, were the basis of a paper by AMMF CEO Helen Morement, which has now been publis...

Read More

The Cancer52 CNS Report

Through their work, Clinical Nurse Specialists (CNS) can bring invaluable support and humanity to the treatment and care of their patients. To demonstrate the importance of their work, and how it can improve the quality of life for patients diagnosed with the rare and less common cancers, Cancer52¹ have produced a report: “Clinical Nurse Specialists working with people with rare and less common...

Read More

Amble for AMMF 2017

The 2017 Amble for AMMF will take place on Sunday, 3rd September, and we invite all AMMF’s supporters to join with us in this event! On the first Sunday in September each year, we bring together all AMMF's supporters, wherever you are in the world, to raise funds and awareness for AMMF and cholangiocarcinoma. How it works: Amble any distance, anywhere. You can join in wherever you are in the UK or i...

Read More

AMMF joins European Reference Network (Rare-Liver)

AMMF is now a representative and advocate for cholangiocarcinoma patients within ERN-RARE-LIVER, the rare hepatic disease section of the European Research Networks. ERN RARE-LIVER is looking to connect expert centres across Europe, including the UK, to improve access to diagnosis, treatment and high quality care for patients with rare liver diseases. To find out more about the work of the ERNs click...

Read More

Professor Narong’s fight against cholangiocarcinoma hits the headlines

The work of Professor Narong Khuntikeo, who was a keynote speaker at AMMF’s cholangiocarcinoma conference earlier this year, has been hitting headlines in the health sections of the British press over the last few days. Professor Narong Khuntikeo of Khon Kaen University, Thailand, is a liver surgeon who is particularly dedicated to educating and helping the population of the Isaan region of north e...

Read More

New insights to the mechanisms driving cholangiocarcinoma

An enormous unmet clinical need exists for novel therapies in cholangiocarcinoma (cancer of the bile ducts). This disease has a poor prognosis; patients often present too late for the only curative procedure - surgical resection, and investigations to obtain tissue for diagnostic confirmation are invasive and often inconclusive. There is currently no serum biomarker of the disease, which would aid early dia...

Read More