Oligometastatic disease

Discussion Forum Discussion Forum Introductions Oligometastatic disease

This topic contains 2 replies, has 3 voices, and was last updated by  Jodie J 10 months, 4 weeks ago.

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    I am Ana and I am speaking from Portugal. My 69 year old father was diagnosed with intrahepatic cholangiocarcinoma 3 weeks ago. He had some pain on his right side with coughing or other effort and it was all. The tumor is not in the principal bile ducts so he hasn’t jaundice. He was scheduled for surgery until 4 days ago when the PET and MRI showed a 12mm bone metastase in the third lumbar vertebra. The surgery was cancelled and He will have a biopsy this week to start chemo.

     I would like to know if anybody had a similar story with bone metastases and what was the treatment plan. There is no place for local liver radiotherapy because of distant metastases but I still think of that possibility. 

    Thank you for your help in advance!!



    Dear Ana

    Welcome to AMMF’s Discussion Forum. We are sorry to hear that your father has recently been diagnosed with intrahepatic cholangiocarcinoma.

    You might want to ask your father’s consultant about Zoledronic Acid and if this might be helpful for him. Zoledronic acid is used to stabilise bone density, and amongst other things, it’s used for those with bone metastases resulting from any solid tumour. So, there is a possibility it could be useful for your father, to help stabilise what is going on in his spine.

    There is more information on the use of Zoledronic acid in the management of metastatic bone disease here: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2503661/

    I hope that others on our forum will come in with their own experiences and please post again if you need further information.

    Kind regards

    Please note it is not appropriate for AMMF to give specific medical advice or recommendations, but we do have a wealth of experience and information which we are always willing to share, whenever possible.


    Jodie J

    Hello Ana,

    I hope this message finds you and you Dad well. I dont know if the following will help, but its worth a try.

    1) demand your Dad has stends fitted imidiately in both sides of his liver, in preprarion for chemo.

    2) find an oncologist invested in Cholangiocarsioma.

    3) bananas, tumeric and such foods as well as a lot of oxygen to the body will slow this vile cancer.

    Im so sorry you are all going through this. My thoughts are with you.

    Jodie & Brian xxxx

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