My dad found out about his cholangiocarcinoma following a doctors appointment for acid reflux! He had blood tests which showed he may have a liver blockage and that’s when the jaundice appeared. He went into hospital for scans and then had an ERCP with plastic stent. He then got an infection and so another ERCP with a metal stent. They wanted to perform a whipples procedure but had to PET scan and then biopsy his liver. Unfortunately my poor Paps has cancer of the liver too. He has now been offered palliative chemotherapy. He is a very fit 63 year old with such a passion for life. I’m absolutely gutted!
I am 25 years old and I work in the hospital setting. I have obviously researched the outcomes and it’s heartbreaking to see how vastly it progresses. My paps doesn’t want to know, which selfishly makes things difficult. I think I’m just looking for advice from people that are in a similar situation where their loved one doesn’t want to know but you do? I love how positive he is being but I’m finding it difficult to feel the same. Obviously when he’s not with me!
I’m very sorry to learn that your dad has been diagnosed with cholangiocarcinoma, but thank you for posting to AMMF’s forum. You obviously need to share how you are feeling and I hope that others will come in on your post with some helpful comments and advice.