My experience with my Paps

Discussion Forum Discussion Forum Introductions My experience with my Paps

This topic contains 1 reply, has 2 voices, and was last updated by  Julie_ammf 3 weeks, 5 days ago.

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  • #13990

    neeco
    Participant

    Hi Guys!
    My dad found out about his cholangiocarcinoma following a doctors appointment for acid reflux! He had blood tests which showed he may have a liver blockage and that’s when the jaundice appeared. He went into hospital for scans and then had an ERCP with plastic stent. He then got an infection and so another ERCP with a metal stent. They wanted to perform a whipples procedure but had to PET scan and then biopsy his liver. Unfortunately my poor Paps has cancer of the liver too. He has now been offered palliative chemotherapy. He is a very fit 63 year old with such a passion for life. I’m absolutely gutted!
    I am 25 years old and I work in the hospital setting. I have obviously researched the outcomes and it’s heartbreaking to see how vastly it progresses. My paps doesn’t want to know, which selfishly makes things difficult. I think I’m just looking for advice from people that are in a similar situation where their loved one doesn’t want to know but you do? I love how positive he is being but I’m finding it difficult to feel the same. Obviously when he’s not with me! 
    Thank you! 

    #13991

    Julie_ammf
    Moderator

    Hi Neeco

    I’m very sorry to learn that your dad has been diagnosed with cholangiocarcinoma, but thank you for posting to AMMF’s forum. You obviously need to share how you are feeling and I hope that others will come in on your post with some helpful comments and advice.

    Please look at the organisations on our helpful links page who might also be able to offer you further support http://ammf.org.uk/helpful-links/

    with kindest regards to you and your dad
    Julie

    Please note it is not appropriate for AMMF to give medical advice or recommendations, and all details provided are for information purposes only.

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