AMMF’s research awards – now in excess of £0.5m

Since AMMF was founded in 2002, one of the charity’s major objectives has been to support specialised research teams in their work to find the causes, methods of earlier diagnosis and effective treatments for cholangiocarcinoma (CC). Thanks to the unstinting and generous help of its fundraisers and donors, AMMF has awarded in excess of £0.5m (half a million pounds sterling) in grants to support cholangi...

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PCI Biotech trial report

A cancer focused biopharmaceutical company based in Norway, PCI Biotech, have recently reported an update on their phase I/II study in inoperable bile duct cancer patients. “The phase I part of the study has been completed with good tolerability and promising early signs of efficacy. The independent evaluation of the radiology data at six months from patients treated in cohort III and the expanded ...

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The Swedish study – thanks to the JNCI

A recently published Swedish study reported a link between sugary drinks and increased risk of biliary tract and gallbladder cancer. This was a large study of 70,832 Swedish adults (who did not have cancer or diabetes) who were questioned about diet. As the full report is a restricted access document, AMMF asked the Journal of the National Cancer Institute (JNCI) if they would be prepared to allow us to ...

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Updates on transplant, trials and more …

AMMF’s Helen Morement reports on the NCRI Hepatobiliary Clinical Trials group meeting, June 2016 In my capacity as a patient representative and advocate, I attend the regular NCRI Hepatobiliary Clinical Trials group meetings, where I get the opportunity to put forward questions and seek information on behalf of cholangiocarcinoma patients.   The members of this group are concerned wit...

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Sweet drinks and biliary tract cancer; is there a link?

An new study from Sweden has been much in the news lately, linking the consumption of sugary drinks, juices as well as sodas, to biliary tract cancer (bile duct cancer/cholangiocarcinoma) and gallbladder cancer: "People who consume at least two juice drinks a day had more than twice the risk of developing gallbladder tumours and a 79 per cent higher risk of cancer in the liver bile ducts, according to a ...

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AMMF joins European Cancer Patient Coalition

AMMF is pleased to have joined the  European Cancer Patient Coalition (ECPC) as a full member. ECPC is the largest European cancer patients' umbrella organisation, representing 370+ organisations in dozens of countries.  One of the coalition's main aims is to ensure no cancer is forgottten. Providing a unified voice for cancer patients across Europe, ECPC is working towards equality for all canc...

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AMMF’s “inspirational meeting”

AMMF's Information Day at Imperial College London, 10 May 2016 Malcolm Robinson, CC survivor and longstanding AMMF supporter, summed up the thoughts of many of those who attended AMMF's Information Day on 10 May at Imperial College London: “A wonderful opportunity to find out just how all the AMMF fundraising efforts of our supporters is invested in medical experts of the highest quality and dedicatio...

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The Two Toms in Thailand

Two Imperial College London 'medical students to be', Tom Hughes and Tom O'Connor, have taken on an elective period of research and study into cholangiocarcinoma in Kohn Kaen, Thailand, and are sharing their experiences with AMMF.             The Two Toms blogged especially for the inaugural World Cholangiocarcinoma Day on 17 February 2016 - to read...

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AMMF in Thailand 2016

The incidence of cholangiocarcinoma is increasing, not only in the UK but throughout the world.  It is certainly a global problem, but Thailand has the world's highest incidence of this disease, with the Isaan Province in the north east of the country being the epicentre. Following the 3-day international cholangiocarcinoma workshop in Khon Kaen in north east Thailand in 2014, which AMMF attended, and w...

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AMMF launches Discussion Forum

After many requests, AMMF has now launched a Discussion Forum on its new, revamped website. The Discussion Forum is for everyone whose life has been touched in any way by cholangiocarcinoma (bile duct cancer, biliary tract cancer, gall bladder cancer) providing an area where patients, family members, carers, supporters, fundraisers and those who have been bereaved, can talk about all things related t...

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